Foreword |
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xi | |
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Acknowledgments |
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xiii | |
About the Author |
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xv | |
Introduction |
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xvii | |
My Caregiving Journey |
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xvii | |
Are You a Caregiver? |
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xix | |
A Community of Caregivers |
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xxi | |
Your Job Description |
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xxii | |
In This Guide |
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xxiii | |
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Chapter 1 Your Caregiving Plan |
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1 | (22) |
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2 | (1) |
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Your Five-Step Caregiving Plan |
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3 | (18) |
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Review, Adapt, Revise ... Repeat |
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21 | (1) |
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Your Job Description: Planner |
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22 | (1) |
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Chapter 2 Caring for You, the Caregiver |
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23 | (20) |
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24 | (1) |
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The Emotional Roller Coaster |
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25 | (2) |
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27 | (2) |
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29 | (11) |
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Maintain Your Own Finances |
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40 | (1) |
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41 | (1) |
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Your Job Description: Self-Care Coach |
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41 | (2) |
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Chapter 3 Your Caregiving Team |
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43 | (16) |
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44 | (1) |
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45 | (2) |
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47 | (1) |
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48 | (3) |
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51 | (5) |
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When Teamwork Doesn't Go Smoothly |
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56 | (1) |
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Reinforcing, Recognizing, and Appreciating Your Team |
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57 | (1) |
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Your Job Description: Team Builder |
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57 | (2) |
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Chapter 4 The Organized Caregiver: Tips for Staying Sane |
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59 | (14) |
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60 | (1) |
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60 | (3) |
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Information at Your Fingertips |
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63 | (2) |
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65 | (5) |
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Documents and Information to Gather |
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70 | (2) |
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Your Job Description: Efficiency Expert |
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72 | (1) |
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Chapter 5 Working Caregivers |
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73 | (20) |
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74 | (1) |
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The Lowdown on Working Caregivers |
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75 | (1) |
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Challenges Specific to Working Caregivers |
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76 | (2) |
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78 | (1) |
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Communicating with Your Employer |
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78 | (2) |
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Employer Support for Caregivers |
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80 | (5) |
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Services and Support for Working Caregivers and Their Loved Ones |
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85 | (2) |
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Workplace Discrimination Toward Caregivers |
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87 | (2) |
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When You Need to Make a Job Change |
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89 | (1) |
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Being Paid to Care for Loved Ones |
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90 | (1) |
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Your Job Description: Work-Life Coordinator |
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91 | (2) |
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93 | (18) |
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94 | (1) |
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Talking with Your Loved Ones About Plans and Wishes |
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95 | (2) |
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97 | (10) |
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107 | (1) |
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Keeping Track of Legal Documents |
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108 | (1) |
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Finding Professional Help for Legal Issues |
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109 | (1) |
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Your Job Description: Legal Manager |
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110 | (1) |
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Chapter 7 Managing Finances |
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111 | (18) |
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112 | (1) |
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Signs Your Loved Ones Might Need Help with Finances |
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113 | (1) |
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Increasing Help ... Gradually |
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114 | (2) |
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116 | (1) |
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116 | (2) |
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118 | (1) |
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118 | (2) |
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Income from Home Ownership |
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120 | (1) |
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Income from Benefits Programs |
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121 | (2) |
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123 | (1) |
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124 | (1) |
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125 | (1) |
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Getting Professional Help |
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126 | (1) |
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Your Job Description: Financial Manager |
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127 | (2) |
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Chapter 8 Health and Healing |
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129 | (28) |
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130 | (1) |
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Your Role as Health-Care Advocate |
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130 | (2) |
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Helping Loved Ones Stay Well |
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132 | (7) |
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139 | (3) |
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142 | (1) |
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142 | (2) |
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144 | (2) |
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So Many Health Practitioners, So Little Time |
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146 | (7) |
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Sensitive Issues: Toileting and Incontinence |
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153 | (2) |
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Your Job Description: Health-Care Advocate |
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155 | (2) |
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Chapter 9 When Your Loved Ones Live at Home |
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157 | (20) |
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158 | (1) |
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The Decision to Live at Home |
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158 | (1) |
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159 | (6) |
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Home- and Community-Based Services |
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165 | (3) |
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Tips for Evaluating Workers and Services |
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168 | (1) |
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168 | (4) |
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When You and Loved Ones Live Together |
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172 | (3) |
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Your Job Description: Home-Based Care Coordinator |
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175 | (2) |
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Chapter 10 When Your Loved Ones Live in a Facility |
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177 | (16) |
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178 | (1) |
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179 | (3) |
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182 | (3) |
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185 | (1) |
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Downsizing, Moving, and Making It Home |
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186 | (2) |
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188 | (3) |
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When There Are Problems with the Facility |
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191 | (1) |
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Your Job Description: Housing Coordinator |
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192 | (1) |
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Chapter 11 Crisis Management 101 |
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193 | (16) |
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194 | (1) |
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194 | (6) |
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Implementing Your Crisis Management Plan |
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200 | (1) |
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Managing a Hospitalization |
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201 | (6) |
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Your Job Description: Crisis Manager |
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207 | (2) |
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Chapter 12 Handling the End of Life |
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209 | (18) |
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210 | (1) |
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Handling Your Own Emotions |
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210 | (4) |
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Talking About the End of Life with Your Loved Ones |
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214 | (3) |
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Respecting and Enforcing Their Wishes |
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217 | (1) |
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Compassionate End-of-Life Care |
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218 | (2) |
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220 | (6) |
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Your Job Description: End-of-Life Coordinator |
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226 | (1) |
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Chapter 13 Life After Caregiving |
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227 | (18) |
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228 | (1) |
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Dealing with Grief and Loss |
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228 | (6) |
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234 | (1) |
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235 | (4) |
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The Benefits of Caregiving |
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239 | (2) |
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Caregiving and Your Life Plan |
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241 | (2) |
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Your Job Description: Life Transition Coordinator |
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243 | (2) |
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Appendix A Tips for Challenging Conversations |
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245 | (4) |
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Appendix B Is It Time to Stop Driving? |
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249 | (4) |
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Appendix C Hospital Survival Kit |
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253 | (4) |
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Appendix D Music and Caregiving |
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257 | (2) |
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259 | (19) |
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259 | (1) |
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260 | (1) |
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AARP Caregiving Resources |
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261 | (2) |
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263 | (2) |
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265 | (1) |
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266 | (1) |
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Driving and Transportation |
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267 | (1) |
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267 | (1) |
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268 | (1) |
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269 | (1) |
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270 | (2) |
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Hospice and Palliative Care |
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272 | (1) |
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273 | (1) |
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273 | (1) |
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Local Service and Support |
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273 | (1) |
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274 | (1) |
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274 | (1) |
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275 | (1) |
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275 | (1) |
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276 | (2) |
Select Sources |
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278 | |