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Prevention Science and Research in Intellectual and Developmental Disabilities, Volume 61 [Kietas viršelis]

Volume editor (Research scientist, Department of Human Development and Family Studies Prevention Research Center<), Volume editor (Director of the Prevention Research Center, Professor, Human Development and Family Studies, Colorado State University, Colorado, USA)
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Prevention Science and Research in Intellectual and Developmental Disabilities, Volume 61 highlights the WHOs emphasis on the importance of adopting a public health approach. Chapters in the book include A Prevention Science Approach to Promoting Health for Those with Developmental Disabilities, From Surviving to Thriving: A New Conceptual Model to Advance Interventions to Support People with FASD Across the Lifespan, Disability-related Abuse in People with Intellectual and Developmental Disabilities: Considerations Across the Lifespan, Two Sides of the Same Coin: A Qualitative Study of Multiple Stakeholder Perspectives on Factors Affecting Implementation of Evidence-Based Practices for Children with Autism in Elementary Schools, and more.

Other topics discussed include Family-Focused Interventions as Prevention and Early Intervention of Behavioral Problems in Children with Autism Spectrum Disorder, Body weight improvements associated with nutritional intervention for adults with IDD living in group homes: A randomized controlled trial, Lifestyle Intervention Adaptation to Promote Healthy Eating and Physical Activity of Youth with Intellectual and Developmental Disability, Cultural Adaptations of the Parents Taking Action Program for Youth with Autism Spectrum Disorder, and more.

  • Includes a framework for integrating a prevention science approach into IDD research
  • Provides examples of prevention science research with IDD populations
  • Illustrates how some are implementing and adapting preventive interventions for those with IDD
Contributors ix
1 Applying a prevention science approach to promoting health for individuals with intellectual and developmental disabilities
1(38)
Nathaniel R. Riggs
Susan Hepburn
Miranda E. Pinks
1 Introduction
2(1)
2 Current and historical barriers to integrating prevention science and intellectual/developmental disabilities research
3(2)
3 Prevention science
5(22)
4 Concluding comments
27(12)
References
28(11)
2 From surviving to thriving: A new conceptual model to advance interventions to support people with FASD across the lifespan
39(38)
Christie L.M. Petrenko
Carson Kautz-Turnbull
1 Introduction
40(1)
2 The "From Surviving to Thriving" model: Advancing interventions and supports for people with FASD
41(1)
3 Deficits, barriers, and surviving
42(3)
4 Strengths, supports, and thriving
45(3)
5 A focused review of strengths and gaps in interventions for FASD based on the from surviving to thriving model
48(6)
6 Current and future directions to advance intervention research and supports for people with FASD
54(12)
7 Conclusion
66(11)
Conflict of interest
66(1)
References
66(11)
3 Disability-related abuse in people with intellectual and developmental disabilities: Considerations across the lifespan
77(22)
Emily M. Lund
1 Disability-related abuse in people with intellectual and developmental disabilities: Considerations across the lifespan
78(1)
2 Disability-related abuse
79(6)
3 Other effects of disability on abuse risk and manifestations of abuse
85(4)
4 Health consequences of abuse: Disability-related complications
89(2)
5 Interventions for disability-related abuse
91(1)
6 Directions for future research
92(2)
7 Conclusion
94(5)
References
94(5)
4 Two sides of the same coin: A qualitative study of multiple stakeholder perspectives on factors associated with implementation of evidence-based practices for children with autism in elementary schools
99(34)
Kaitlyn Ahlers
Maria L. Hugh
Lindsay Frederick
Jill Locke
1 Implementing EBPs with fidelity for improved outcomes
101(1)
2 Understanding fidelity of implementation through a multilevel framework
101(2)
3 Digging deeper: Understanding how multilevel factors relate to implementation quality
103(1)
4 Purpose
104(1)
5 Method
105(4)
6 Results
109(15)
7 Discussion
124(9)
Acknowledgments
128(1)
References
129(4)
5 Captivating: Avatars as therapeutic agents for children with intellectual and developmental disabilities
133(26)
Lisa Daunhauer
Francisco Ortega
Ross Beveridge
Joe Strout
Anita Bundy
1 Introduction
134(6)
2 Do agents improve developmental outcomes for children with IDDs?
140(9)
3 Future directions
149(4)
4 Summary and conclusions
153(6)
References
154(5)
6 Family-focused interventions as prevention and early intervention of behavioral problems in children with autism spectrum disorder
159(34)
Laura Lee Mclntyre
Megan Kunze
1 Review of family-focused interventions for children with ASD
162(13)
2 Participants
175(1)
3 Dependent measures
176(1)
4 Study design
177(1)
5 Generalization, maintenance, consumer satisfaction, treatment integrity
178(1)
6 Family-centered interventions
178(3)
7 Intervention outcomes
181(2)
8 Strengths of extant literature
183(1)
9 Limitations and future directions
184(2)
10 Conclusions
186(7)
Acknowledgement
187(1)
References
187(6)
7 Body weight improvements associated with a nutritional intervention for adults with IDD living in group homes: A randomized controlled trial
193(30)
Bethany Rigles
Kathleen Humphries
Joshua A. Goode
1 Background
194(3)
2 The MENU-AIDDs nutritional intervention for adults with IDD
197(2)
3 Methods
199(6)
4 Results
205(13)
5 Conclusion
218(5)
References
218(5)
8 Lifestyle intervention adaptations to promote healthy eating and physical activity of youth with intellectual and developmental disabilities
223(40)
Carol Curtin
April B. Bowling
Kerri N. Boutelle
Sarabeth Broder-Fingert
Gretchen A. Dittrich
Lauren T. Ptomey
Heidi I. Stanish
Diane D. Boas
Richard K. Fleming
Tanja V.E. Krai
Linda G. Bandini
1 Introduction
224(2)
2 Guiding frameworks
226(2)
3 Examples of adapted lifestyle interventions
228(8)
4 Physical activity interventions
236(7)
5 Weight loss interventions
243(8)
6 Discussion
251(12)
Acknowledgments
256(1)
Funding
256(1)
References
256(7)
9 Cultural adaptations of a parent training program for families of children with ASD/IDD: Parents taking action
263(31)
Sandy Magana
Sarah Dababnah
Yue Xu
Mariana Garcia Torres
Sarah R. Rieth
Christina Corsello
Elizabeth Rangel
Lauren E. Srookman-Frazee
Sandra B. Vanegas
1 Introduction
264(10)
2 PTA adapted for parents of black children with or at-risk for ASD
274(4)
3 PTA adapted for Chinese immigrant families
278(4)
4 PTA adapted for parents of youth with ASD in Colombia
282(3)
5 PUENTE: Padres Unidos en Transformacion y Empoderamiento
285(5)
6 ASD Screening and Parent ENgagement (ASPEN) Intervention Program
290(4)
References 294
Dr. Nathaniel R. Riggs is a professor of Human Development and Family Studies and Director of the Prevention Research Center at Colorado State University. He serves on the Board of Directors for the Society for Prevention Research and as associate editor for the journal, Prevention Science. It is through these experiences and his collaborations with colleagues in the Colorado State University Developmental Disabilities Lab that he has recognized the timely opportunity that is bridging the fields of prevention science and intellectual and developmental disabilities research. Dr. Riggs research focuses on translating basic science in neurocognitive development to the development of preventive interventions that promote child and adolescent social-emotional, behavioral, and physical health. Of primary interest is the development of executive function, the set of neurocognitive skills mediated by the prefrontal cortex that encompass self-regulated decision-making and goal-oriented problem-solving. His research has demonstrated that disruptions in the development of executive function can be an important contributor to patterns of childhood and adolescent aggressive and depressive symptomatology, substance use, and obesity.

Importantly, Dr. Riggs takes a social-ecological approach that views neurocognitive development within the context of important family, peer, and educational influences. It is these important contexts that set the stage for healthy neurocognitive development. Dr. Riggs research has demonstrated that supporting these contexts with preventive interventions can significantly improve youth behavioral health due, in part, to the ability of preventive interventions to promote neurocognitive development. Dr. Bethany Rigles is a Research Scientist in the Department of Human Development and Family Studies Prevention Research Center at Colorado State University. For over a decade, Dr. Rigles has been conducting research at the intersection of prevention science and intellectual and developmental disabilities (IDD). Dr. Rigles research focuses on understanding and addressing health disparities among individuals with IDD, with a particular emphasis on racial/ethnic minorities with IDD. Dr. Rigles is particularly interested in the development of health interventions to ultimately reduce health disparities and improve quality of life for this population. Prior to her role at the Prevention Research Center, Dr. Rigles worked at the University of Montanas Rural Institute (Montanas University Center of Excellence in Developmental Disabilities) developing interventions to improve health among adults with IDD. Among other things, this work included the development of a violence prevention program for women with disabilities, a nutritional intervention for adults with IDD, and a health promotion intervention for adults in Vocational Rehabilitation. She also served as the Montana State Coordinator for the Utah Regional Leadership Education in Neurodevelopmental and Related Disabilities (UR-LEND).

Dr. Rigles recent research has continued to explore health, IDD, and families by investigating the effects of adverse childhood experiences (ACEs) on diverse youth with autism spectrum disorder and their families, and the impact of ACEs on long-term physical and mental health as well as resilience. She is also exploring the concept of health-related quality of life among diverse individuals with Down syndrome. Her ultimate goal with this research is to develop culturally responsive preventative interventions aimed at improving health and quality of life for specific IDD populations. Dr. Rigles previous and current research demonstrates the importance of creating, adapting, and implementing preventative interventions within the IDD population to improve health and well-being outcomes.