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E-book: Risky Relations: Family, Kinship and the New Genetics

, (Cardiff University), , (Cardiff University, UK Cardiff University, Wales College of Medicine, Cardiff, UK Cardiff University, Wales College of Medicine, UK Cardiff University, UK)
  • Format: 224 pages
  • Pub. Date: 15-May-2020
  • Publisher: Berg Publishers
  • Language: eng
  • ISBN-13: 9781000189919
  • Format - EPUB+DRM
  • Price: 46,79 €*
  • * the price is final i.e. no additional discount will apply
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  • This ebook is for personal use only. E-Books are non-refundable.
  • Format: 224 pages
  • Pub. Date: 15-May-2020
  • Publisher: Berg Publishers
  • Language: eng
  • ISBN-13: 9781000189919

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Increasingly more conditions are now being identified as having a genetic component, and controversial new genetic technologies potentially have major consequences for social relations and self-identity. How do family members respond to the information that they have a genetically transmitted disease or condition? How do they communicate (or not communicate) about their shared heritage? How do they decide who to tell and who not to tell within their family? Richly illustrated with the real experiences of individuals and families, Risky Relations is essential reading for anthropologists and sociologists of health and medicine, specialists in family and kinship, and health professionals concerned with the treatment and counselling of clients with genetic conditions. The lived impact of genetic technology on understanding within families with genetic conditions has never been systematically explored. This book fills a major gap by placing ethical, medical and social debates surrounding this charged issue firmly in context.

Reviews

This book makes for a stimulating read, it is elegantly written, refreshingly jargon free and manages to make its undoubtedly complex subject matter very accessible to the reader. - Dr Nina Hallowell, Social Science & Medicine

More info

Also available in hardback, 9781845201784 GBP50.00 (November, 2005)
Preface vii
Acknowledgements xiii
Risky Relations and Other Complexities
1(24)
Accomplishing Kinship
25(32)
Routes and Journeys: Beliefs about Inheritance and Routes of Transmission
57(16)
Mutual Surveillance
73(18)
Practical Ethics and Disclosure
91(26)
Family Narratives
117(22)
Risky Relations
139(12)
Appendix: Summary of Conditions 151(8)
References 159(10)
Index 169


Katie Featherstone is a Research Fellow in the Centre for Social and Economic Aspects of Genomics, Cardiff University.Aditya Bharadwaj is a Research Associate in the Centre for Social and Economic Aspects of Genomics, Cardiff University.Angus Clarke is Professor and Honorary Consultant in Clinical Genetics at the University of Wales College of Medicine.Paul Atkinson is Distinguished Professor of Sociology at Cardiff University, and Associate Director of the ESRC Centre for Social and Economic Aspects of Genomics.