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36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss fifth edition [Kietas viršelis]

4.29/5 (4687 ratings by Goodreads)
  • Formatas: Hardback, 384 pages, aukštis x plotis x storis: 229x152x31 mm, weight: 658 g, Not illustrated
  • Serija: A Johns Hopkins Press Health Book
  • Išleidimo metai: 10-Jan-2012
  • Leidėjas: Johns Hopkins University Press
  • ISBN-10: 1421402793
  • ISBN-13: 9781421402796
Kitos knygos pagal šią temą:
  • Formatas: Hardback, 384 pages, aukštis x plotis x storis: 229x152x31 mm, weight: 658 g, Not illustrated
  • Serija: A Johns Hopkins Press Health Book
  • Išleidimo metai: 10-Jan-2012
  • Leidėjas: Johns Hopkins University Press
  • ISBN-10: 1421402793
  • ISBN-13: 9781421402796
Kitos knygos pagal šią temą:
Originally published in 1981, The 36-Hour Day was the first book of its kind. Thirty years later, with dozens of other books on the market, it remains the definitive guide for people caring for someone with dementia. Now in a new and updated edition, this best-selling book features thoroughly revised chapters on the causes of dementia, managing the early stages of dementia, the prevention of dementia, and finding appropriate living arrangements for the person who has dementia when home care is no longer an option. Praise for The 36-Hour DayBoth a guide and a legend.- Chicago TribuneThe best guide of its kind.- Chicago Sun-TimesAn excellent book for families who are caring for persons with dementia... A book that physicians can confidently recommend to the families of their patients.- Journal of the American Medical AssociationExcellent guidance and clear information of a kind that the family needs... The authors offer the realistic advice that sometimes it is better to concede the patients frailties than to try to do something about them, and that a compassionate sense of humor often helps.- New York TimesAn admirably realistic guide to caring for people with Alzheimers.- New York Review of BooksAn excellent, practical manual for families and professionals involved in the care of persons with progressive illnesses... The book is specific and thought-provoking, and it will be helpful to anyone even remotely involved with an impaired person... Highly recommended, especially for public and nursing libraries.- Library JournalContinues to be the bible of recommendation for any caregiver whose family member suffers from dementia.- BookwatchRecommended to all caregivers and families of persons with dementia as an indispensable source of valuable information on a very wide range of topics.- Case Management JournalsAn excellent guide with general information for family caregivers of persons with dementia... The text is person focused and describes the complexity and depth of the care required not only for persons with Alzheimers disease and other forms of dementia but also for caregivers.- Activities, Adaptation and Aging

Recenzijos

"Both a guide and a legend." (Chicago Tribune) "The best guide of its kind." (Chicago Sun-Times) "An excellent book for families who are caring for persons with dementia... A book that physicians can confidently recommend to the families of their patients." (Journal of the American Medical Association) "Excellent guidance and clear information of a kind that the family needs... The authors offer the realistic advice that sometimes it is better to concede the patient's frailties than to try to do something about them, and that a compassionate sense of humor often helps." (New York Times) "An admirably realistic guide to caring for people with Alzheimer's." (New York Review of Books)"

Foreword xvii
Preface xix
Acknowledgments xxiii
1 Dementia
1(11)
What Is Dementia?
5(2)
The Person Who Has Dementia
7(3)
Where Do You Go from Here?
10(2)
2 Getting Medical Help for the Person Who Has Dementia
12(9)
The Evaluation of the Person with a Suspected Dementia
13(3)
Finding Someone to Do an Evaluation
16(1)
The Medical Treatment and Management of Dementia
17(4)
The Physician
18(1)
The Nurse
19(1)
The Social Worker
19(1)
The Geriatric Care Manager
20(1)
The Pharmacist
20(1)
3 Characteristic Behavioral Symptoms in People Who Have Dementia
21(25)
The Brain, Behavior, and Personality: Why People Who Have Dementia Do the Things They Do
21(4)
Caregiving: Some General Suggestions
25(2)
Memory Problems
27(1)
Overreacting, or Catastrophic Reactions
28(5)
Combativeness
33(1)
Problems with Speech and Communication
34(6)
Problems the Person with Dementia Has in Making Himself Understood
34(3)
Problems the Person with Dementia Has in Understanding Others
37(3)
Loss of Coordination
40(3)
Loss of Sense of Time
43(1)
Symptoms That Are Better Sometimes and Worse at Other Times
44(2)
4 Problems in Independent Living
46(15)
Mild Cognitive Impairment
46(2)
Managing the Early Stages of Dementia
47(1)
When a Person Must Give Up a Job
48(1)
When a Person Can No Longer Manage Money
49(2)
When a Person Can No Longer Drive Safely
51(3)
When a Person Can No Longer Live Alone
54(7)
When You Suspect That Someone Living Alone Is Developing Dementia
55(2)
What You Can Do
57(1)
Moving to a New Residence
58(3)
5 Problems Arising in Daily Care
61(40)
Hazards to Watch For
61(6)
In the House
62(3)
Outdoors
65(1)
In the Car
66(1)
Highways and Parking Lots
66(1)
Smoking
67(1)
Hunting
67(1)
Nutrition and Mealtimes
67(9)
Meal Preparation
68(1)
Mealtimes
68(2)
Problem Eating Behaviors
70(2)
Malnutrition
72(1)
Weight Loss
72(1)
Choking
73(1)
When to Consider Tube Feeding
74(2)
Exercise
76(2)
Recreation
78(3)
Meaningful Activity
80(1)
Personal Hygiene
81(7)
Bathing
82(2)
Locating Care Supplies
84(1)
Dressing
85(1)
Grooming
86(1)
Oral Hygiene
86(2)
Incontinence (Wetting or Soiling)
88(5)
Urinary Incontinence
88(3)
Bowel Incontinence
91(1)
Cleaning Up
92(1)
Problems with Walking and Balance; Falling
93(4)
Becoming Chairbound or Bedfast
95(1)
Wheelchairs
96(1)
Changes You Can Make at Home
97(4)
Should Environments Be Cluttered or Bare?
99(2)
6 Medical Problems
101(22)
Pain
103(1)
Falls and Injuries
103(1)
Pressure Sores
104(1)
Dehydration
104(1)
Pneumonia
105(1)
Constipation
105(1)
Medications
106(3)
Dental Problems
109(1)
Vision Problems
110(1)
Hearing Problems
111(1)
Dizziness
112(1)
Visiting the Doctor
112(1)
If the III Person Must Enter the Hospital
113(2)
Seizures, Fits, or Convulsions
115(1)
Jerking Movements (Myoclonus)
116(1)
The Death of the Person with Dementia
116(1)
The Cause of Death
117(1)
Dying at Home
117(1)
Hospice
118(1)
Dying in the Hospital or Nursing Home
118(1)
When Should Treatment End?
119(1)
What Kind of Care Can Be Given at the End of Life?
120(3)
7 Behavioral Symptoms of Dementia
123(31)
The Six R's of Behavior Management
123(2)
Concealing Memory Loss
125(1)
Wandering
126(8)
Reasons That People Wander
127(1)
The Management of Wandering
128(6)
Sleep Disturbances and Night Wandering
134(3)
Worsening in the Evening ("Sundowning")
137(1)
Losing, Hoarding, or Hiding Things
138(1)
Rummaging in Drawers and Closets
139(1)
Inappropriate Sexual Behavior
140(2)
Repeating the Question
142(1)
Repetitious Actions
142(1)
Distractibility
143(1)
Clinging or Persistently Following You Around ("Shadowing")
144(1)
Complaints and Insults
145(3)
Taking Things
148(1)
Forgetting Telephone Calls
148(1)
Demands
149(2)
Stubbornness and Uncooperativeness
151(1)
When the Person with Dementia Insults the Sitter
151(1)
Using Medication to Manage Behavior
152(2)
8 Symptoms That Appear as Changes in Mood
154(16)
Depression
154(1)
Complaints about Health
155(1)
Suicide
156(1)
Alcohol or Drug Abuse
156(1)
Apathy and Listlessness
157(1)
Remembering Feelings
157(1)
Anger and Irritability
158(1)
Anxiety, Nervousness, and Restlessness
159(2)
False Ideas, Suspiciousness, Paranoia, and Hallucinations
161(8)
Misinterpretation
162(1)
Failure to Recognize People or Things (Agnosia)
162(1)
"You Are Not My Husband"
163(1)
"My Mother Is Coming for Me"
163(1)
Suspiciousness
164(3)
Hiding Things
167(1)
Delusions and Hallucinations
167(2)
Having Nothing to Do
169(1)
9 Special Arrangements If You Become III
170(4)
In the Event of Your Death
172(2)
10 Getting Outside Help
174(19)
Help from Friends and Neighbors
174(1)
Finding Information and Services
175(2)
Kinds of Services
177(4)
Having Someone Come into Your Home
178(1)
Adult Day Care
178(2)
Short-Stay Residential Care
180(1)
Planning in Advance for Home Care or Day Care
181(1)
When the Person with Dementia Rejects the Care
181(3)
Your Own Feelings about Getting Respite for Yourself
184(1)
Locating Resources
185(2)
Paying for Care
187(2)
Should Respite Programs Mix People Who Have Different Problems?
189(1)
Determining the Quality of Services
190(1)
Research and Demonstration Programs
191(2)
11 You and the Person Who Has Dementia as Parts of a Family
193(19)
Changes in Roles
195(4)
Understanding Family Conflicts
199(2)
Division of Responsibility
199(2)
Your Marriage
201(1)
Coping with Role Changes and Family Conflict
201(4)
A Family Conference
203(2)
When You Live out of Town
205(1)
When You Are Not the Primary Caregiver, What Can You Do to Help?
206(1)
Caregiving and Your Job
207(1)
Your Children
208(4)
Teenagers
210(2)
12 How Caring for a Person Who Has Dementia Affects You
212(22)
Emotional Reactions
212(13)
Anger
213(3)
Embarrassment
216(1)
Helplessness
217(1)
Guilt
218(2)
Laughter, Love, and Joy
220(1)
Grief
221(1)
Depression
222(1)
Isolation and Feeling Alone
223(1)
Worry
223(1)
Being Hopeful and Being Realistic
224(1)
Mistreating the Person with Dementia
225(1)
Physical Reactions
226(1)
Fatigue
226(1)
Illness
226(1)
Sexuality
227(2)
If Your Spouse Has Dementia
227(2)
If Your Impaired Parent Lives with You
229(1)
The Future
229(3)
You as a Spouse Alone
231(1)
When the Person You Have Cared for Dies
232(2)
13 Caring for Yourself
234(12)
Take Time Out
235(3)
Give Yourself a Present
236(1)
Friends
236(1)
Avoid Isolation
237(1)
Find Additional Help If You Need It
238(4)
Recognize the Warning Signs
238(2)
Counseling
240(2)
Joining with Other Families: The Alzheimer's Association
242(2)
Support Groups
242(1)
Excuses
243(1)
Advocacy
244(2)
14 For Children and Teenagers
246(4)
15 Financial and Legal Issues
250(12)
Your Financial Assessment
250(6)
Potential Expenses
251(1)
Potential Resources
252(4)
Where to Look for the Forgetful Person's Resources
256(3)
Legal Matters
259(3)
16 Nursing Homes and Other Living Arrangements
262(31)
Types of Living Arrangements
263(5)
Moving with the Person Who Has Dementia
268(6)
Finding a Nursing Home or Other Residential Care Setting
274(9)
Paying for Care
276(2)
Guidelines for Selecting a Nursing Home or Other Residential Care Facility
278(5)
Moving to a Nursing Home or Other Residential Care Facility
283(2)
Adjusting to a New Life
285(4)
Visiting
285(3)
Your Own Adjustment
288(1)
When Problems Occur in the Nursing Home or Other Residential Care Facility
289(2)
Sexual Issues in Nursing Homes or Other Care Facilities
291(2)
17 Preventing or Delaying Cognitive Decline
293(6)
Normal Changes
293(1)
General Mental and Physical Health
294(1)
Lifestyle Factors
294(1)
Physical Exercise
294(1)
Diet
295(1)
Potential Treatments and Cures
295(2)
Mental Exercise
295(2)
Medications and Vitamins
297(1)
Limiting Exposure to Toxic Chemicals
297(1)
Aluminum
298(1)
Head Injury
298(1)
18 Brain Disorders and the Causes of Dementia
299(13)
Mild Cognitive Impairment
299(1)
Dementia
300(9)
Alcohol Abuse Associated Dementia
301(1)
Alzheimer Disease
301(2)
Cortical Basal Ganglionic Degeneration
303(1)
Depression
303(1)
The Frontotemporal Dementias
304(1)
HIV-AIDS
305(1)
Lewy Body Dementia
306(1)
Primary Progressive Aphasia
306(1)
Progressive Supranuclear Palsy
307(1)
Traumatic Brain Injury (TBI or Head Trauma)
307(1)
Vascular Dementia
308(1)
Young or Early Onset Dementia
309(1)
Other Brain Disorders
309(3)
Delirium
310(1)
Korsakoff Syndrome
310(1)
Stroke and Other Localized Brain Injury
310(1)
Transient Ischemic Attack
311(1)
19 Research in Dementia
312(19)
Understanding Research
313(2)
Bogus Cures
313(2)
Research in Vascular Dementia and Stroke
315(1)
Research in Alzheimer Disease
316(6)
Structural Changes in the Brain
316(1)
Brain Cells
316(1)
Neuroplasticity
316(1)
Neurotransmitters
317(1)
Abnormal Proteins
317(1)
Protein Abnormalities within Brain Cells
318(1)
Nerve Growth Factors
318(1)
Transplants of Brain Tissue
319(1)
Drug Studies
319(1)
Metals
320(1)
Prions
321(1)
Immunological Defects
321(1)
Head Trauma
321(1)
Epidemiology
322(1)
Down Syndrome
322(1)
Old Age
323(1)
Heredity
323(2)
Gender
325(1)
Neuropsychological Testing
325(1)
Brain Imaging
326(1)
Keeping Active
327(1)
The Effect of Acute Illness on Dementia
328(1)
Research into the Delivery of Services
328(1)
Protective Factors
329(2)
Appendix 1 Using the Internet 331(2)
Appendix 2 Organizations 333(4)
Index 337
Nancy L. Mace, M.A., is retired. She was a consultant to and member of the board of directors of the Alzheimer's Association and an assistant in psychiatry and coordinator of the T. Rowe and Eleanor Price Teaching Service of the Department of Psychiatry and Behavioral Sciences of the Johns Hopkins University School of Medicine. Peter V. Rabins, M.D., M.P.H., is the Richman Family Professor of Alzheimer Disease and Related Disorders in the Department of Psychiatry and Behavioral Sciences of the Johns Hopkins University School of Medicine. He has joint appointments at the Bloomberg School of Public Health in the departments of Mental Health, and Health Policy and Management. Dr. Rabins is also the director of the Division of Geriatric Psychiatry and Neuropsychiatry, the T. Rowe and Eleanor Price Teaching Service, and the Jane K. Schapiro Family-Centered Dementia Care Program.