Foreword |
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ix | |
Preface |
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xi | |
Acknowledgements |
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xiv | |
Introduction |
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1 | (4) |
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PART I The dying person and their loved ones |
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5 | (58) |
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1 Attitudes to death and dying |
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7 | (31) |
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8 | (11) |
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Everyone has to die their own death, even me |
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8 | (2) |
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10 | (2) |
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Reconciliation with oneself and with others |
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12 | (3) |
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Comfortable, peaceful, free of pain - an ideal death? |
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15 | (2) |
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17 | (2) |
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Some assumptions which colour our perception |
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19 | (6) |
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Self-determination and longevity set against euthanasia |
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20 | (1) |
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Living with unpredictability |
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21 | (2) |
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23 | (1) |
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Looking forward to an unknown future |
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24 | (1) |
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The question we cannot answer |
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25 | (6) |
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Why do we have to suffer? |
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26 | (2) |
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Limitations of the scientific method |
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28 | (1) |
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The story behind the patient |
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29 | (2) |
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Fears, stresses and strains |
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31 | (7) |
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31 | (2) |
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33 | (1) |
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34 | (4) |
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2 The end of life - people's experiences |
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38 | (25) |
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Patient experiences: a mixed bag of feelings and ordeals |
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39 | (14) |
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40 | (2) |
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42 | (3) |
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45 | (7) |
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52 | (1) |
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Carers' experiences: sharing or mirroring the patient's |
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53 | (10) |
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Protection of self and others |
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54 | (2) |
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56 | (2) |
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58 | (2) |
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60 | (3) |
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PART II Medicine and care at the end of life |
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63 | (104) |
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3 Medical intervention, a life saver or a life changer? |
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65 | (24) |
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Quality of life and death, the purpose of medicine |
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66 | (5) |
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What do we mean by quality of life? |
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66 | (2) |
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How do we assess quality of life in another person? |
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68 | (1) |
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From quality of life to quality of death |
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69 | (2) |
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Professional identity and evidence-based practice |
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71 | (8) |
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72 | (1) |
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Standards, options, recommendations and much more |
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73 | (2) |
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Weighing up the benefits and harm of a treatment |
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75 | (4) |
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A technical and an ethical act |
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79 | (10) |
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What makes medical intervention right or wrong? |
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80 | (1) |
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Accountability, liability and risk |
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81 | (3) |
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Matching patient's motivation and treatment |
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84 | (5) |
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4 Euthanasia and assisted dying |
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89 | (27) |
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Euthanasia, assisted dying, palliative sedation what is it? |
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89 | (3) |
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Situation in the countries we considered |
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92 | (3) |
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92 | (1) |
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93 | (1) |
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93 | (1) |
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94 | (1) |
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What is the effect 15 years on from introducing the law? |
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95 | (8) |
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Inconsistencies in the law |
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95 | (4) |
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Due care and accompaniment |
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99 | (2) |
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101 | (2) |
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103 | (13) |
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Pressures, power and control |
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105 | (4) |
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No euthanasia `on command' |
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109 | (3) |
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Decisions have ripple effects |
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112 | (4) |
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116 | (32) |
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117 | (7) |
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Sensitive medical communication |
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117 | (4) |
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Advance directives and advance care planning |
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121 | (1) |
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End-of-life conversations |
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122 | (2) |
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124 | (8) |
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125 | (3) |
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128 | (2) |
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130 | (1) |
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Autonomy does not exclude dependency |
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131 | (1) |
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132 | (16) |
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The whole family is the patient |
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132 | (3) |
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Relief from pain and suffering |
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135 | (3) |
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138 | (4) |
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Focus on life and relationships |
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142 | (2) |
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144 | (4) |
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148 | (5) |
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7 Post-script: Lessons from Covid-19 |
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153 | (14) |
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Context of chaos and uncertainty |
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153 | (2) |
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Changed relationships with patients and families |
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155 | (1) |
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156 | (2) |
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Triage and advance care planning |
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158 | (2) |
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160 | (2) |
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Caregiver (di)stress and support |
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162 | (1) |
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163 | (1) |
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164 | (3) |
Glossary |
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167 | (2) |
Index |
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169 | |