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Communicating at the End of Life: Finding Magic in the Mundane [Minkštas viršelis]

  • Formatas: Paperback / softback, 264 pages, aukštis x plotis: 229x152 mm, weight: 490 g
  • Serija: LEA's Series on Personal Relationships
  • Išleidimo metai: 19-Oct-2006
  • Leidėjas: Routledge
  • ISBN-10: 080585567X
  • ISBN-13: 9780805855678
Kitos knygos pagal šią temą:
  • Formatas: Paperback / softback, 264 pages, aukštis x plotis: 229x152 mm, weight: 490 g
  • Serija: LEA's Series on Personal Relationships
  • Išleidimo metai: 19-Oct-2006
  • Leidėjas: Routledge
  • ISBN-10: 080585567X
  • ISBN-13: 9780805855678
Kitos knygos pagal šią temą:
This enlightening volume provides first-hand perspectives and ethnographic research on communication at the end of life, a topic that has gone largely understudied in communication literature. Author Elissa Fosters own experiences as a volunteer hospice caregiver form the basis of the book. Communicating at the End of Life recounts the stories of Foster and six other volunteers and their communicative experiences with dying patients, using communication theory and research findings to identify insights on the relationships they form throughout the process. What unfolds is a scholarly examination of a subject that is significant to every individual at some point in the life process.

Organized chronologically to follow the course of Fosters involvement with hospice and the phases of the study, the book opens with Part 1, providing background and contextual information to help readers understand subsequent stories about communication between volunteers and patients. Part 2 of the volume emphasizes the adjustments required by the volunteers as they entered the world of hospice and the worlds of the patients. Part 3 underscores the importance of improvisation and finding balance within the role of volunteerin particular how to be fully present for patients as well as their family members. The volume concludes with Part 4, which addresses how volunteers coped with the death of their patients and what they learned from the experience of volunteering.

Communicating at the End of Life is appropriate for scholars and advanced students studying personal relationships, health communication, gerontology, interpersonal communication, lifespan communication, and communication & aging. Its unique content offers precious and meaningful insights on the communication processes at a critical point in the life process.

Recenzijos

"This is an account of Elissa Foster's moving experiences as a hospice volunteer, focusing in particular on communication and drawing on many stories of her experiences of being with dying people. It also reflects a critical engagement with a wide range of existing academic literature derived from sociological, anthropological and other kinds of studies of dying and hospice care. In bringing these two areas of experience and scholarship together, the author has produced a significant and insightful work, likely to be of great value to people involved both in hospice care and in developing academic perspectives on this. I congratulate the author on her achievement." Clive Seale Brunel University

"Communicating at the End of Life views out-patient hospice care through the eyes of a doctoral student doing ethnography by volunteering. The book offers an honest record of what volunteer visits feel like, moment by moment. New hospice volunteers and volunteer-coordinators will find the book of particular interest." Arthur W. Frank University of Calgary

"This book offers extraordinary insight into the emotions and surprising beauty of dying experiences. Foster strikes just the right balance between personal experience and empirical rigor. Athena du Pre' University of West Florida

"Although an abundance of literature concerned with end-of-life concerns has been rapidly growing in the last 10 years, much of the work has been from the viewpoint of the medical profession. Communicating at the End of Life alone deals with volunteers' experiences with palliative care. Its depiction of the hospice volunteer and, on a larger scale, of a volunteer in any social service offers a realistic overview of the limitations, difficulties, and pleasures of volunteer activities. It is also a realistic picture, although a sad one, of the sometimes ineffectual functioning of hospice organizations in general." --Viola Mecke, PsycCRITIQUES "This is an account of Elissa Foster's moving experiences as a hospice volunteer, focusing in particular on communication and drawing on many stories of her experiences of being with dying people. It also reflects a critical engagement with a wide range of existing academic literature derived from sociological, anthropological and other kinds of studies of dying and hospice care. In bringing these two areas of experience and scholarship together, the author has produced a significant and insightful work, likely to be of great value to people involved both in hospice care and in developing academic perspectives on this. I congratulate the author on her achievement." Clive Seale Brunel University

"Communicating at the End of Life views out-patient hospice care through the eyes of a doctoral student doing ethnography by volunteering. The book offers an honest record of what volunteer visits feel like, moment by moment. New hospice volunteers and volunteer-coordinators will find the book of particular interest." Arthur W. Frank University of Calgary

"This book offers extraordinary insight into the emotions and surprising beauty of dying experiences. Foster strikes just the right balance between personal experience and empirical rigor. Athena du Pre' University of West Florida

Series Foreword xi
Preface xv
Part I: Hospice as a Context of Health Care and Interpersonal Communication
1 Beginnings
3(19)
Am I Ready?
3(9)
Integrating the Private and the Public
12(3)
Defining Hospice
15(5)
Anticipation
20(2)
2 Volunteer Training
22(17)
Arriving
22(1)
Communication in Hospice
23(3)
Second Day of Training
26(1)
The Role of "Talk" in Hospice
27(2)
Physical Death in Hospice
29(2)
Graduation
31(2)
Reflections: Hospice Volunteer Training
33(6)
Part II: Entering the Country of the Dying
3 Taking the First Steps
39(11)
The Telephone Call
39(3)
Meeting Dorothy
42(5)
An Early Crisis
47(3)
4 The Volunteers' Stories
50(30)
Sarah
50(4)
Emilia
54(4)
Tom
58(5)
Chris
63(5)
Shyanne
68(5)
Hannah
73(7)
5 Going Out
80(17)
The Fishing Pier
80(2)
Dorothy's Restaurant
82(7)
Reflections: Surmounting the Stigma of Dying
89(8)
Part III: Communication as Improvisation: Learning How to "Be There" for People at the End of Life
6 Living in the Moment Between Life and Death
97(25)
The Coffee Maker
97(2)
Building a Bridge
99(2)
Tom
101(6)
Sarah
107(6)
"The" Conversation
113(3)
Reflections: What Does it Mean to Be "Dying" in Hospice?
116(6)
7 Caring Without Conversation
122(17)
Emilia
123(5)
Chris
128(5)
Another "Spell"
133(2)
Reflections: Assumptions About the Value of "Talk" in Hospice
135(4)
8 Being Together, Letting Go
139(24)
September 11, 2001
139(1)
Dorothy's Birthday
140(1)
Hannah
141(5)
Dorothy's Fighting Spirit
146(2)
Shyanne
148(7)
Back on Oxygen
155(1)
The Dollar Store
156(1)
Reflections: Dialectics and Finding Balance in the Volunteer Role
157(6)
Part IV: Communication at the Time of Death
9 Endings
163(15)
Slowing Down
163(2)
Our Last Visit
165(7)
Letting Go
172(3)
One Last Time
175(3)
10 Volunteers' Reflections on the First Year
178(16)
Catching Up
178(4)
Shyanne's Vigil
182(3)
The Volunteer–Patient Relationship
185(3)
Advice for Volunteers and Hospice-as-Organization
188(2)
Lessons to Take Forward
190(4)
11 Hospice and Communication at the End of Life
194(21)
Three Aspects of the Volunteer's Journey: Idealism, Criticism, Realism
194(6)
Hospice Volunteers as Antidote to the Pain of Social Dying
200(8)
Finding Magic in the Mundane
208(2)
A Personal Statement
210(5)
Appendix 215(18)
Narrative Ethnography
215(5)
Ethnographic Interviewing
220(5)
References
225(8)
Author Index 233(4)
Subject Index 237


Elissa Foster