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El. knyga: Ethical Issues in Pediatric Organ Transplantation

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This book offers a theoretical and practical overview of the specific ethical and legal issues in pediatric organ transplantation. Written by a team of leading experts, Ethical Issues in Pediatric Organ Transplantation addresses those difficult ethical questions concerning clinical, organizational, legal and policy issues including donor, recipient and allocation issues. Challenging topics, including children as donors, donation after cardiac death, misattributed paternity, familial conflicts of interest, developmental disability as a listing criteria, small bowel transplant, and considerations in navigating the media are discussed. It serves as a fundamental handbook and resource for pediatricians, transplant health care professionals, trainees, graduate students, scholars, practitioners of bioethics and health policy makers.

Introduction - Rodrķguez-Arias,Greenberg, and Goldberg.- 1.0 Living Donation.- 1.1 Minors as organ donors -Freedman Ross, Parker and Thistelwaite.- 1.2 Living donors for fulminanthepatic failure in children - Segedi and Grant.- 1.3 The Ethics of Persuasion:Evaluating the ethical limits on attempting to persuade families to donate theorgans of deceased family members - Chandler and Gruben.- 1.4 MisattributedPaternity - Freeman and Parker.- 2.0 Deceased Donation.- 2.1 Deathdetermination in children - Shemie and Ortega-Deballon.- 2.2 Controlleddonation after cardiac death (2 chapters).- 2.2.1 Controlled donation aftercardiac death in pediatrics - Talati and Frader.- 2.2.2 Ethical andorganizational challenges in controlled donation after cardiac death forchildren - Harrison.- 3.0 Emerging Technology.- 3.1 Ethical issues in pediatricbowel rehabilitation and small bowel transplantation - Fecteau.- 3.2Vascularized Composite Allotransplantation (VCA) - Zlotnik Shaul, Wright,

Flynn, Borschel, Hanson, and Zuker.- 3.3 Media management - Amaral and Feudtner.-4.0 Allocating Organs.- 4.1Transplantation for pediatric foreign nationals -Fortin and Greenberg.- 4.2 Neurodevelopmental status as a criterion for solidorgan transplant eligibility - Wightman, Diekema and Smith.- 5.0 RecipientIssues.- 5.1 Psychosocial aspects ofpediatric organ transplantation - Derrington, Goldberg and Frader.- 5.2 Ethicalissues in adolescents and transplantation - Goldberg and Fine.- Conclusion -Rodrķguez-Arias, Greenberg, Goldberg.

Recenzijos

This book is strongly recommended for professionals working in the area of paediatric organ transplantation. It offers a theoretical and practical overview of the unique ethical, practical and legal issues in paediatric transplantation . Topics are scholarly and well researched, elegantly presented, with the scientific rigor of an academic publication. this book will contribute to building awareness and anticipating problems in this field with a view to instituting policy and protection of a vulnerable paediatric population. (Olinda Timms, The National Medical Journal of India, Vol. 30 (3), May- June, 2017)

This book is an important contribution to the literature both in pediatric transplantation and transplantation ethics. it is certainly one that should be available in every pediatric centers library and available to all members of the various transplant programs. (R. B. Ettenger, American Journal of Transplantation, January, 2017)

Introduction xxiii
Part I Living Donation
Children as Living Donors
3(16)
Lainie Friedman Ross
J. Richard Thistlethwaite Jr.
Living Donors for Fulminant Hepatic Failure in Children
19(24)
Maja Segedi
Genieve Dhani
Vicky L. Ng
David Grant
Answers to Questions that Weren't Asked: The Ethical Complexities of Identifying Misattributed Paternity During the Transplant Evaluation Process
43(20)
Michael A. Freeman
Lisa S. Parker
Part II Deceased Donation
The Ethics of Persuasion: Evaluating the Ethical Limits on Attempting to Persuade Families to Donate the Organs of Deceased Family Members
63(20)
Jennifer A. Chandler
Vanessa Gruben
Death Determination in Pediatric Organ Donation
83(16)
Sam D. Shemie
Ivan Ortega-Deballon
Sonny Dhanani
Controlled Donation After Cardiac Death in Pediatrics
99(20)
Erin Paquette
Joel Frader
The Newborn as Organ Donor
119(12)
Christopher Tomlinson
Jonathan Hellmann
Ethical and Organizational Issues in Adopting a Pediatric Protocol for Controlled Donation After Circulatory Determination of Death
131(22)
Charlotte H. Harrison
Part III Emerging Challenges
Ethical Issues in Pediatric Small Bowel Transplantation
153(16)
Annie Fecteau
Ethical Issues in Pediatric Vascularized Composite Allotransplantation
169(24)
Randi Zlotnik Shaul
Gregory H. Borschel
Jennifer Flynn
Mark D. Hanson
Linda Wright
Ronald M. Zuker
The Ethics of Managing Conflicts in the Era of Social Media
193(22)
Sandra Amaral
Pamela Nathanson
Chris Feudtner
Part IV Allocating Organs
Neurodevelopmental Status as a Criterion for Solid Organ Transplant Eligibility
215(22)
Aaron Wightman
Jodi Smith
Douglas S. Diekema
Should Transplantation Be Offered to Pediatric Foreign Nationals?
237(24)
Marie-Chantal Fortin
Rebecca A. Greenberg
Part V Recipient Issues
The Ethics of Uncertainty, Risk, and Trust in Pediatric Heart Transplantation
261(18)
Daniel Z. Buchman
Anne I. Dipchand
Ethical Considerations in the Psychosocial Evaluation of Pediatric Organ Transplant Candidates, Recipients and Their Families
279(22)
Sabrina F. Derrington
Aviva M. Goldberg
Joel E. Frader
Ethical Issues in the Care of the Adolescent Transplant Recipient
301(30)
Aviva M. Goldberg
Richard Fine
Afterword 331(2)
Index 333
CV's of editors attached.