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Handbook for Mortals: Guidance for People Facing Serious Illness [Minkštas viršelis]

4.24/5 (168 ratings by Goodreads)
  • Formatas: Paperback / softback, 256 pages, aukštis x plotis: 234x164 mm, weight: 467 g, numerous black & white photgraphs
  • Išleidimo metai: 25-Oct-2001
  • Leidėjas: Oxford University Press Inc
  • ISBN-10: 0195146018
  • ISBN-13: 9780195146011
  • Formatas: Paperback / softback, 256 pages, aukštis x plotis: 234x164 mm, weight: 467 g, numerous black & white photgraphs
  • Išleidimo metai: 25-Oct-2001
  • Leidėjas: Oxford University Press Inc
  • ISBN-10: 0195146018
  • ISBN-13: 9780195146011
Modern medical technology has changed not only the way we live but also the way we die. Until two generations ago, people usually died suddenly, after an accident or serious illness. Now, most of us may expect our dying to take longer, to require more care, and to demand more forethought than ever before. "Handbook for Mortals" is warmly addressed to all those who wish to approach the final years of life with greater awareness of what to expect and greater confidence about how to make the end of our lives a time of growth, comfort, and meaningful reflection. Written by Dr. Joanne Lynn and a team of expert physicians, this book provides equal measures of practical information and wise counsel. Readers will learn what decisions they will need to face, what choices are available to them, where to look for help, how to ease pain and other symptoms, what to expect with specific diseases, how the health-care system operates, and how the entire experience affects dying persons, their families, and their friends. Such practical information is indispensable. But equally important are the personal stories included here of how people have come to terms with dying, how they have faced their fears and made their choices. These give us moving firsthand insights into a profoundly important process, one that is increasingly kept hidden in our culture. From down-to-earth advice on how to talk to your doctor to inspiring quotes from such writers as Emily Dickinson, W. H. Auden, Jane Kenyon, and others, "Handbook for Mortals" encompasses the needs of both the body and the spirit in our final years.

Recenzijos

"This book is overwhelmingly comprehensive and easy to read ... The down-to-earth advice, inspiring quotations nd the way the authors have interwined the physical, psychosocial and spiritual aspects makes this book a valuable resource for any member of a palliative care interdisciplinary team. It could also help lay volunteers develop the gentle insight that is required for hospice and bereavement care. " International Journal of Palliative Nursing, Vol 8, No 3

Foreword xiii Rosalynn Carter Introduction 1(4) Living With Serious Illness 5(10) Am I ``living with or ``dying of? How we die -- then and now Practice, practice, practice Planning for uncertainty The power of words Not particularly interested in dying... Decisions to make, decisions to wait No one ``right way Enduring and Changing 15(12) Mourning your losses Seeing yourself more clearly Coping with changes in appearance Taking care of yourself Setting realistic goals About relationships Life is changing, but... Finding Meaning 27(12) Religion and relationships Meaning and loss Chaplains and others who can help Helping Family Make Decisions and Give Care 39(8) Families deciding together Family caregiving How can a caregiver know if things are out of control? What to do when the caregiver is overwhelmed How do you find support groups? Is there anything good about caregiving? Getting the Help You Need 47(10) How to find help and advice Call your local Office on Aging Getting the help of a case manager When your family needs a break Getting your wishes followed at home When you have help in your home What to do when things dont go well A guide to settings and services How do I pay for these services? Talking With Your Doctor 57(14) Know what you should expect from your doctor Getting the most out of each visit with your doctor Talking with your doctor -- special situations When you are hesitant to ask questions Controlling Pain 71(14) Types of pain Choosing the right pain medicine Different ways to take pain medicine Doses of pain medicine A few rules about pain management How often to take pain medicine Fear of addiction Side effects of pain medications More medications that relieve pain Managing Other Symptoms 85(8) ``I feel very short of breath, as if I just cant breathe. ``I just cant eat. ``What are bed sores and how can I prevent them? ``I want to stay awake; theres so much yet to do. ``Some people are so depressed, but Im just so anxious. ``Should I be worried about getting confused or just being `out of it? ``Remind me -- can anything good happen? Learning About Specific Illnesses 93(26) How long do I have? Heart disease Cancer Lung disease: emphysema and chronic bronchitis Kidney failure Liver failure HIV/AIDS Dementia Dying while very old Planning Ahead 119(10) ``Why should I make plans now? ``How can I be sure my choices will be followed? ``What else matters with advance directives? ``I had a living will in Ohio and now Im in Florida. Do I need a new one? ``What about planning for where to live when I am more disabled? ``What about planning my finances? ``Why do I need someone to speak for me? ``My mother had a living will but the doctor ignored it. Is this common? ``Is it legal to refuse life-sustaining treatment? ``What else should I plan for? ``All of this is sort of depressing, isnt it? Forgoing Medical Treatment 129(10) Thinking about the issues Stopping treatment Time-limited trials When food seems like love The benefits of dehydration at the end of life Tube feeding and the dementia patient Artificial feeding and the permanently unconscious patient Choosing to stop eating and drinking Decisions about ventilators Decisions about resuscitation The many meanings of ``DNR Other decisions to forgo treatments Hastening Death 139(10) Considering suicide: When you just cant face another day ``I want to spare my family. ``I want to be sure to die comfortably. Wouldnt suicide be a guarantee? ``Dont the laws now allow physician-assisted suicide? ``What about Oregon? ``What are some of the arguments against legalizing physician-assisted suicide? ``What arguments support physician-assisted suicide? ``I dont trust doctors. ``Outside of Oregon, is there any physician-assisted suicide? Coping With Events Near Death 149(12) ``How will I know when death is getting close? ``What should family and friends do when death is close? ``Is it important to be there at the moment of death? ``How does a family member know that the person has died? ``What happens then? ``Can family keep some information out of the obituary? ``How long can one wait before burial or cremation? ``Can family know what was learned in an autopsy before burial or cremation? ``How does a family follow religious and other important traditions? ``What does one do at a `viewing or at `visiting hours? ``Are there things that must be done right after the burial or cremation? The Dying of Children 161(10) Infants Sudden causes of childhood death Fatal chronic illness with intact intellect Rare disorders Disorders with impaired consciousness Conclusion Dying Suddenly 171(8) Violence Accidents Natural disasters Suicide Multiple deaths During chronic illness or recuperation Sudden Infant Death Syndrome Some special issues -- police, autopsy, and organ donation Sudden death Enduring Loss 179(16) Grieving your own dying Telling your story The cycle of grief Experiencing grief -- family and loved ones Living with loss of a loved one Music and mourning Do children grieve? Childrens understanding of death: what to expect and how to help What do you do to comfort a child? Reinvesting in life after the loss of someone you love Additional Resources 195(25) Contents Issue-specific Diseases General information and resources for reform Personal resources Acknowledgments 220(9) Index 229