Volume I |
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Part II Systems of Delivery of Health Care |
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1 Introduction to Intellectual and Developmental Disabilities |
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5 | (10) |
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2 Health Is More than Medicine |
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15 | (18) |
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3 History of Health Care for People with Intellectual and Developmental Disability |
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33 | (16) |
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Section 4 Family Centered Care |
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4 Family Centered Care in a Health Care Setting |
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49 | (10) |
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5 Siblings of Children and Adults with Intellectual and Developmental Disability |
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59 | (10) |
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6 Grandparents as Caregivers for Grandchildren with Intellectual and Developmental Disabilities |
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69 | (10) |
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79 | (6) |
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8 The Rights of Individuals with Disability to Parenthood |
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85 | (18) |
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103 | (8) |
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10 Transitioning Youth to Adult Health Care: A Person-Centered and Culturally Competent Approach |
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111 | (12) |
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Section 5 Integrating Systems of Care |
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11 Integrating Systems of Care for Individuals with Intellectual and Developmental Disabilities Across the Lifespan |
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123 | (14) |
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Section 6 International Classification |
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12 International Classification of Function |
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137 | (12) |
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Section 7 Systems of Health Care Delivery |
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13 Clinical Settings for Health Care Delivery |
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149 | (6) |
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14 Reaching the Unserved and Underserved: Medical Care in Rural and Urban Settings |
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155 | (14) |
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15 International Perspectives on the Delivery of Health Care |
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169 | (8) |
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177 | (8) |
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17 Systems of Health Care Delivery: Community Setting |
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185 | (10) |
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18 Models of Care for Children with Medical Complexity |
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195 | (14) |
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209 | (10) |
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20 Health Care Transition |
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219 | (10) |
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229 | (14) |
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243 | (12) |
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23 Current and Emerging Trends for Residential Supports for Persons with Intellectual and Developmental Disabilities and the Impact of Managed Care Initiatives |
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255 | (10) |
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24 Large Residential Care Facilities |
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265 | (12) |
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277 | (12) |
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289 | (14) |
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Section 8 Principles of Care |
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27 Principles of Care and Ethics |
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303 | (10) |
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Section 9 Practicalities of Care |
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28 Practicalities of Care for Adults with Intellectual and Developmental Disabilities |
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313 | (22) |
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29 Electronic Medical Records |
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335 | (12) |
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Section 10 Intellectual Disability and The Environment |
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347 | (16) |
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31 Fetal Environment and Risks for Intellectual and Developmental Disabilities |
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363 | (10) |
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Section 11 Built Environments |
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32 Built Environments for Improving Human Development and Promoting Health and Quality of Life |
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373 | (22) |
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33 Public Health Perspectives on Intellectual and Developmental Disabilities |
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395 | (18) |
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Section 13 International Perspectives |
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34 Systems of Delivery of Health Care for Persons with Developmental Disabilities: The Case of Belgium |
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413 | (6) |
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35 Services for People with Intellectual Disability in the United Kingdom |
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419 | (10) |
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36 People with Developmental Disabilities in the United States of America |
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429 | (10) |
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37 Former Soviet Countries |
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439 | (14) |
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38 Health and Social Services for People with Intellectual and Developmental Disabilities in Taiwan |
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453 | (8) |
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39 Intellectual Disability in India: Recent Trends in Care and Services |
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461 | (10) |
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40 Services for People with Intellectual and Developmental Disabilities in Hong Kong |
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471 | (12) |
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41 International Perspectives: Israel |
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483 | (10) |
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493 | (12) |
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43 Organization of Services and Life-Long Health Care: Japan |
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505 | (4) |
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44 Special-Needs Education, Special Care, and Education for Physicians in Finland |
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509 | (8) |
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45 South America. A Service Example from Lima, Peru |
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517 | (12) |
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46 Analysis of Service and Legislative Frameworks in Turkey across the Lifespan |
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529 | (8) |
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47 Service Organization and Support for People with Intellectual and Developmental Disabilities in the Netherlands |
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537 | (8) |
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48 International Perspectives: Chile |
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545 | (10) |
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Maria de los Angeles Paul |
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49 Services for Persons with Intellectual and Developmental Disabilities in Italy |
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555 | (8) |
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50 Denmark. A Historic Journey |
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563 | (8) |
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51 Service and Care in Australia |
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571 | (10) |
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581 | (14) |
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Section 1 Evaluation and Assessment |
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53 Developmental and Functional Evaluation and Assessment |
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595 | (24) |
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54 Communication with Patients, Parents and Other Caregivers |
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619 | (12) |
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Section 3 Inborn Errors of Metabolism |
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631 | (10) |
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56 The Mucopolysaccharidoses |
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641 | (18) |
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659 | (24) |
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58 Mitochondrial Disorders |
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683 | (20) |
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Section 4 Genetics and Genetic Syndromes |
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59 What Is New in Genetics and Genomics? |
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703 | (10) |
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713 | (10) |
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61 22q11.2 Deletion Syndrome: A Paradigmatic Copy-Number-Variant (CNV) Disorder |
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723 | (8) |
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731 | (8) |
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739 | (12) |
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751 | (14) |
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65 Rett Syndrome: Seeing the Way Forward |
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765 | (14) |
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779 | (20) |
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799 | (16) |
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815 | (6) |
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69 Smith-Magenis Syndrome |
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821 | (6) |
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827 | (6) |
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833 | (14) |
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847 | (26) |
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73 Fetal Alcohol Syndrome |
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873 | (10) |
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Section 6 Other Syndromes |
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74 Other Syndromes: Lowe Syndrome |
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883 | (4) |
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75 Other Syndromes: Nager Syndrome |
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887 | (4) |
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76 Other Syndromes: Sturge-Weber Syndrome |
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891 | (4) |
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895 | (8) |
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78 Cornelia de Lange Syndrome |
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903 | (12) |
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79 Prematurity and Its Consequences |
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915 | (16) |
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Volume I |
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931 | (20) |
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Section 9 Neurological Disorders |
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81 Congenital Anomalies of the Central Nervous System |
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951 | (12) |
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963 | (16) |
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979 | (6) |
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985 | (10) |
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85 Dementia and Alzheimer's Disease |
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995 | (18) |
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86 Peripheral Nerve Disorders |
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1013 | (4) |
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87 Pediatric Aspects of Physiatry and Function |
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1017 | (10) |
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88 Physiatry and Function: Common Issues in Adults with Intellectual and Developmental Disabilities |
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1027 | (12) |
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Section 11 Developmental Therapies and Functional Assistance |
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89 Allied Health Professionals |
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1039 | (14) |
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1053 | (16) |
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1069 | (8) |
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92 Speech Language Pathology: Supports to Communication |
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1077 | (10) |
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Section 12 Health promotion |
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1087 | (20) |
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94 Orthopaedic Considerations |
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1107 | (18) |
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1125 | (26) |
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1151 | (14) |
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1165 | (14) |
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Section 17 Otolaryngology |
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1179 | (18) |
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1197 | (12) |
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Section 18 Gastroenterology and Nutrition |
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100 Gastrointestinal Issues |
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1209 | (16) |
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1225 | (14) |
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1239 | (18) |
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Section 19 Endocrinology and Metabolism |
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1257 | (26) |
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Section 20 Kidney and Urinary Tract |
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1283 | (18) |
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Section 21 Cardiovascular System |
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105 Congenital Heart Disease and Down Syndrome |
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1301 | (10) |
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106 Congenital Heart Disease |
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1311 | (14) |
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Section 22 Respiratory System |
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107 Pulmonology and Sleep Disordered Breathing |
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1325 | (24) |
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Section 23 Gender and Sexuality |
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1349 | (10) |
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1359 | (6) |
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1365 | (20) |
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Section 24 Oncology and Hematology |
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1385 | (10) |
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Section 25 Severe and Profound Intellectual Disability |
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112 Care of People with Severe and Profound Intellectual and Developmental Disabilities |
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1395 | (6) |
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113 Psychological Well-Being of Children and Adults with Severe and Profound Intellectual and Developmental Disabilities |
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1401 | (22) |
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Fleur-Michelle M. Coiffait |
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114 Aging: Demographics, Trajectories and Health System Issues |
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1423 | (10) |
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115 Optimizing Health While Aging with Developmental Disabilities |
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1433 | (16) |
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116 Dementia: Screening, Evaluation, Diagnosis and Management |
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1449 | (16) |
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117 Assistive Technology and Older Adults |
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1465 | (8) |
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118 Sarcopenia: Facts and Challenges |
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1473 | (8) |
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Section 27 Mental Health and Behavior |
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119 Introduction to Mental Health and Behavior |
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1481 | (8) |
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120 Psychiatric Assessment |
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1489 | (8) |
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121 Autism Spectrum Disorder |
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1497 | (32) |
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122 Attention Deficit Hyperactivity Disorder |
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1529 | (14) |
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123 Mood Disorders: Depression and Bipolar Disorder |
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1543 | (16) |
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124 Anxiety: Challenges of Normal and Abnormal Responses |
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1559 | (14) |
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125 Behavior Approach to Management of Aggression, Self-Injurious Behavior, and Pica |
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1573 | (12) |
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126 Basic Psychopharmacology |
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1585 | (16) |
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127 Integrated Psychopharmacological Management |
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1601 | (16) |
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1617 | (12) |
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129 Diagnostic, Treatment and Service Considerations to Address Challenging Behavior: A Model Program for Integrated Service Delivery |
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1629 | (16) |
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130 Working with Children and Working with Schools |
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1645 | (10) |
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Christine Hoffner Barthold |
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131 Inpatient Psychiatric Care |
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1655 | (22) |
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132 Multidisciplinary Assessment |
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1677 | (22) |
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133 Integration of Mental and Behavioral Health in Primary Care |
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1699 | (12) |
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Section 28 Infectious Diseases |
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134 Infectious Diseases, Immunizations and Universal Precautions |
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1711 | (20) |
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Section 29 Intensive Care |
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1731 | (16) |
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1747 | (14) |
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Section 31 Emergency Care |
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1761 | (22) |
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Section 32 Primary Health Care |
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138 Community-Based Primary Health Care for Adults |
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1783 | (12) |
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139 An E-Toolkit for Primary Health Care of Adults |
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1795 | (8) |
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140 The Professional Nursing Role in Support of People with Intellectual and Developmental Disabilities |
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1803 | (22) |
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141 Principles of Pharmacology |
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1825 | (20) |
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1845 | (24) |
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Section 36 Pain and Pain Management |
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1869 | (16) |
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144 Anesthesia in Children |
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1885 | (12) |
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1897 | (16) |
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Part IV Values and Quality of Care |
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Section 1 Assessment and Social Determinants |
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146 Assessing Health and Quality of Care |
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1913 | (6) |
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147 Social Determinants of Health |
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1919 | (16) |
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Section 2 Holistic and Integrative Medicine |
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148 Concepts of Holistic Care |
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1935 | (8) |
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1943 | (26) |
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150 Guardianship and Alternatives: Decision-Making Options |
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1969 | (14) |
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151 The Importance of Inclusive Participation in Securing Quality Healthcare Throughout the Lifespan of Persons with Intellectual and Developmental Disabilities: Personal Perspectives |
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1983 | (12) |
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152 Ideal Requirements for the System of the Future: Self-Determination |
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1995 | (16) |
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2011 | (24) |
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Section 6 Healtcare Utilization |
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154 Healthcare Utilization and Costs for Individuals with Disabilities |
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2035 | (20) |
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155 Trends in Using Technology to Achieve Better Health Outcomes |
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2055 | (10) |
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Section 8 Family Quality of Life |
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156 Family Quality of Life |
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2065 | (20) |
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Section 9 Education of Health Professionals |
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2085 | (12) |
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158 Nursing Education About People with Intellectual Disability. An International Perspective |
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2097 | (14) |
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159 Other Health Professions |
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2111 | (14) |
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160 What Undergraduate and Graduate Students Should Know About Disability |
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2125 | (8) |
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161 Continuing Education for Health Care Providers |
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2133 | (8) |
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162 Interdisciplinary Training |
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2141 | (10) |
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Section 10 Barriers to Care |
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2151 | (14) |
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Section 11 Caregiver Stress |
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164 Coping with Caregiver Stress |
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2165 | (22) |
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2187 | (14) |
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Section 1 Research and Intellectual Disability |
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2201 | (12) |
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167 Health Research in Intellectual and Developmental Disabilities |
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2213 | (12) |
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2225 | (12) |
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Part VI Disaster Medicine |
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Section 1 Planning and Response |
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169 Disaster Planning and Response with and for People with Disabilities |
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2237 | (14) |
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Part VII Medicine or Health: Science or Art? |
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170 A Healthy Dose of Laughter and the Arts: The Role(s) of Play, Laughter and the Arts in Promoting Good Health and Maintaining Quality of Life |
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2251 | (16) |
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Section 1 Health and United Nations |
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171 Health and the UN Convention on the Rights of Persons with Disabilities |
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2267 | (26) |
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172 A Glimpse into the Future |
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2293 | (10) |
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Appendices |
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2303 | |