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Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts [Minkštas viršelis]

Edited by (Professor of Social Medicine and Epidemiology, Medical School Brandenburg Theodor Fontane), Edited by (Professor, Integrative Rehabilitatio), Edited by (Professor, Department of Rehabilitation psychology and psychotherapy, University of Freiburg, Germany)
  • Formatas: Paperback / softback, 384 pages, aukštis x plotis x storis: 247x173x21 mm, weight: 666 g
  • Išleidimo metai: 19-Oct-2018
  • Leidėjas: Oxford University Press
  • ISBN-10: 0198806663
  • ISBN-13: 9780198806660
Kitos knygos pagal šią temą:
  • Formatas: Paperback / softback, 384 pages, aukštis x plotis x storis: 247x173x21 mm, weight: 666 g
  • Išleidimo metai: 19-Oct-2018
  • Leidėjas: Oxford University Press
  • ISBN-10: 0198806663
  • ISBN-13: 9780198806660
Kitos knygos pagal šią temą:
What is it like to live with an illness? How do diagnostic procedures, treatments, and other encounters with medical institutions affect a patient's private and social life? By asking these types of questions, illness narratives have gained a reputation as a scientific domain in medicine in the last thirty years. Today, a patient's story plays an important role in doctor-patient communication and the development of a healing relationship.
However, whereas patient experiences have been well acknowledged, methodologically reflected upon and widely collected as research data, less consideration has been invested in exploring how they work in practice. Used in the context of diagnosis, treatment, and teaching, patient stories give us a new perspective on how healthcare could be improved.

Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts highlights the problems, challenges, and opportunities we face when using patient perspectives in practice and research in a clear format to provide readers with a comprehensive overview of this field. It investigates the epistemological foundations and communicational properties of illness narratives, as well as the pragmatic effects of using them as clinical and educational instruments. Significantly, it presents new examples from patient intakes and interviews that illustrate the disparity in communication between patients and medical professionals. The studies in this book also evaluate the experiences of medical practitioners and students who consciously use patient narratives as a tool for improved communication and diagnosis.

Divided into eight sections with practical examples for medical teaching and practice, this book covers the use of patient narratives in communication training and decision making across medicine and psychotherapy. In addition, it reflects on the ethical aspects of working with a patient's personal experience of their illness, reports on cultural differences across the globe, and analyses how patients' stories are used in politics and the media. Written by scholars from multiple disciplines across clinical and theoretical fields, this rich resource provides a critical stance on the use of narratives in medical research, education, and practice.
List of abbreviations
xi
List of contributors
xiii
Section 1 Introduction
1 Introduction: chances and problems of illness narratives
3(10)
Gabriele Lucius-Hoene
Christine Holmberg
Thorsten Meyer
Section 2 Methodological and epistemological challenges
2 Illness narratives in practice: which questions do we have to face when collecting and using them?
13(14)
Gabriele Lucius-Hoene
Martina Breuning
Cornelia Helfferich
3 The researchers' role in re-constructing patient narratives to present them as patient experiences
27(13)
Janka Koschack
Wolfgang Himmel
4 Stories, illness, and narrative norms
40(12)
Lars-Christer Hydin
5 Choices of illness narratives in practice: applying ideas of sampling and generalizability
52(11)
Thorsten Meyer
Margret Xylander
Section 3 Ethical and communicational aspects of using narratives in medicine
6 Illness narratives in counselling---narrative medicine and narrative ethics
63(12)
Hille Haker
7 An illness narrative or a social injustice narrative?
75(14)
Maya Lavie-Ajayi
Ora Nakash
Section 4 Narratives in psychotherapy, rehabilitation, and vocational training
8 Retelling one's life story---how narratives improve quality of life in chronic language impairment
89(15)
Sabine Corsten
Friedericke Hardering
9 Narrative practice, neurotrauma, and rehabilitation
104(11)
Peter Frommelt
Maria I. Medved
Jens Brockmeier
10 Illness narratives in the workplace
115(14)
Ernst von Kardoff
Section 5 Narratives in training of communication and empathy
11 Using narratives for medical humanities in medical training
129(11)
Alexander Kiss
Claudia Steiner
12 The `narrative spirit': narratives for training doctors in Korea
140(11)
Yeonok Jeoung
Gabriele Lucius-Hoene
Yonglk Bak
13 How to use illness narratives in medical education: first teaching experiences with the German DIPEx website project
151(12)
Alexander Palant
Wolfgang Himmel
14 Using patient narratives as source material for creative writing
163(12)
Paula McDonald
15 Engaging the vulnerable encounter: engendering narratives for change in healthcare practice by using participatory theatre methods
175(13)
Chris Heape
Henry Larsen
Merja Ryoppy
16 Drawing on narrative accounts of dementia in education and care
188(15)
Joyce Lamerichs
Manna Alma
Section 6 Narratives in diagnostics
17 Using illness narratives in clinical diagnosis: narrative reconstruction of epileptic and non-epileptic seizures and panic attacks
203(17)
Elisabeth Gulich
18 Structural dream analysis: a narrative methodology for investigating the meaning of dream series and their development in the course of psychotherapy
220(19)
Christian Roesler
Section 7 Narratives in decision making
19 What's in a name? Anecdotes, experience, and the meaning of stories
239(12)
Christine Holmberg
20 Narratives in decision aids: a controversy
251(12)
Victoria A. Shaffer
Brian J. Zikmund-Fisher
Section 8 Narratives in healthcare
21 Understanding and using health experiences to improve healthcare---examples from the United Kingdom
263(9)
Lisa Hinton
Louise Locock
Sue Ziebland
22 Illness narratives as evidence for healthcare policy
272(14)
Susan Law
Ilja Ormel
David Loutfi
John Lavis
23 When public and private narratives diverge: media, policy advocacy, and the paradoxes of newborn screening policy
286(15)
Rachel Grob
Mark Schlesinger
Section 9 Illness narratives in the media
24 Pregnancy 2.0: a corpus-based case study for the analysis of illness narratives online
301(11)
Eleonora Massa
Valentina Simeoni
25 Changes in authenticity: perceptions of parents and youth with ADHD of the effects of stimulant medication
312(12)
Erez C. Miller
Amos Fleischmann
26 Illness narratives in political communication: Instrumental, institutional, and social functions of political actors' public illness accounts
324(13)
Matthias Bandtel
Biographies 337(8)
Author Index 345(8)
Subject Index 353
Gabriele Lucius-Hoene is a retired professor and psychotherapeut at the Department of Rehabilitation Psychology, Institute of Pschology, University of Freiburg. Her research interests are narrative and conversational analysis of life stories, especially illness narratives, and the ways people construct their identities and cope with challenges and suffering by telling their stories.

Christine Holmberg is Professor of Social Medicine and Epidemiology at the Medical School Brandenburg Theodor Fontane. She was trained in anthropology at Humboldt University Berlin and Harvard Medical School, and in epidemiology at the University of Illinois at Chicago. Her research interests include the influence of medical and statistical technologies on patient narratives, experiences, and decision making.

Thorsten Meyer is Professor of Rehabilitation Sciences and has recently become a member of the Faculty of Public Health at the University of Bielefeld, Germany. Trained as a psychologist, he has worked in different health research departments (social psychiatry, social medicine, rehabilitation) in Germany and Switzerland. He currently serves as a speaker of the Qualitative Research Working Group with the German Network on Health Services Research.