Contributors |
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ix | |
Preface |
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xi | |
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1 Blurring Boundaries, Continuing Change: The Next 50 Years of Research in Intellectual and Developmental Disabilities |
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1 | (32) |
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1 History of IDD Research: Controversies and Multiple Sources |
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2 | (5) |
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2 Charting Recent Changes in IDD Research |
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7 | (11) |
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3 Looking to the Next 50 Years |
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18 | (7) |
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25 | (1) |
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26 | (7) |
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2 The Central Role of Etiology in Science and Practice in Intellectual Disability |
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33 | (38) |
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1 Evolving Etiology-Related Research Questions |
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35 | (10) |
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2 Methodological Issues in Research on Neurogenetic Disorders of Intellectual Disability |
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45 | (7) |
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3 Etiology Research and Treatment |
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52 | (5) |
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57 | (1) |
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58 | (13) |
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3 Language Development in Individuals With Intellectual and Developmental Disabilities: From Phenotypes to Treatments |
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71 | (48) |
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1 Language Development in Down Syndrome, Fragile X Syndrome, and Williams Syndrome |
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74 | (14) |
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2 Language as a Target of Treatment and Index of Treatment Efficacy |
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88 | (15) |
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103 | (1) |
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104 | (15) |
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4 Memory and Learning in Intellectual Disability |
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119 | (30) |
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120 | (1) |
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2 The Study of Long-Term Memory in Intellectual Disability |
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121 | (5) |
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3 Short-Term Memory, Working Memory, and Learning in Intellectual Disability |
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126 | (4) |
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4 Memory and Learning in Intellectual Disability: A Neurobiological Perspective |
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130 | (2) |
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132 | (9) |
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141 | (8) |
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5 Social Development Research in ID/DD |
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149 | (16) |
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1 Similarities and Differences in Social Development |
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150 | (1) |
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2 Developmental Difference in Social Communication Gestures |
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151 | (1) |
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3 Similar Sequences in Social Communication Skills |
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152 | (1) |
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4 Intervening on Social Communication |
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153 | (2) |
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5 Are Friendships of Children With Intellectual and Developmental Disabilities Similar to Typical Children? |
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155 | (2) |
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6 Interventions for Peer Relationships and Friendship Development |
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157 | (2) |
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7 Task-Related Social Behavior |
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159 | (1) |
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8 Measurement Challenges in Social Development |
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160 | (1) |
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161 | (1) |
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161 | (4) |
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6 Do Children With Intellectual and Developmental Disabilities Have a Negative Impact on Other Family Members? The Case for Rejecting a Negative Narrative |
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165 | (30) |
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1 Asking "Standard" or Consistent Questions, and Making Comparisons |
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167 | (4) |
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2 The Problem of Sample Biases |
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171 | (2) |
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3 Explaining the Variability in Parental Well-Being |
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173 | (2) |
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4 Asking Questions About Positive Outcomes |
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175 | (3) |
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178 | (4) |
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6 Moving Beyond Individual Variables |
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182 | (3) |
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7 Four Foci for Future Research |
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185 | (3) |
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188 | (2) |
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190 | (5) |
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7 Families of Adolescents and Adults With Intellectual and Developmental Disabilities |
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195 | (38) |
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1 Parent Well-being and the Parent-Child Relationship in Families of Adolescents and Adults With IDD |
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197 | (6) |
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2 Marital Quality in Families of Adolescents and Adults With IDD |
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203 | (6) |
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3 Relationships and Well-being Among Siblings of Adolescents and Adults With IDD |
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209 | (6) |
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4 Summary of Past and Present Research |
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215 | (1) |
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5 Directions for Future Research With Families of Adolescents and Adults With IDD |
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215 | (8) |
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223 | (10) |
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8 Early Identification and Early Treatment of Autism Spectrum Disorder |
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233 | (44) |
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1 What Are Infant Sibling Studies Teaching Us About Intervening in Infants and Toddlers? |
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234 | (6) |
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240 | (8) |
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3 Studies of Treatments for Associated Symptoms of Autism Spectrum Disorder |
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248 | (4) |
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4 Implementation Science and the Appearance of True Effectiveness Studies |
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252 | (4) |
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5 Studies Focused on Supporting American Families and Children With Limited Resources |
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256 | (4) |
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6 Interventions for High-Risk Infants |
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260 | (2) |
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7 Methodological Concerns in Early Intervention Research |
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262 | (5) |
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267 | (2) |
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269 | (1) |
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269 | (8) |
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9 Psychiatric Disorders in People With Intellectual Disabilities: Steps Toward Eliminating Research and Clinical Care Disparities |
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277 | (26) |
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Challenge 1 What Do We Call This Subspecialty? |
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279 | (2) |
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Challenge 2 An Inadequately Trained Mental Health Workforce With Limited Awareness of Psychiatric Disorders in People With Intellectual Disabilities and Limited Motivation to Serve Them |
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281 | (5) |
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Challenge 3 Making Appropriate Psychiatric Diagnoses and Meeting Needs for Nuanced Measures of Outcome in Targeted Clinical Trials and Other Interventions |
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286 | (4) |
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Challenge 4 The Systematic Exclusion of People With Low IQs in Psychiatric and Mental Health Research Programs and Clinical Trials |
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290 | (3) |
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Recommendations to Transform Research and Clinical Care for People With Intellectual Disabilities |
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293 | (4) |
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297 | (6) |
Index |
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303 | (10) |
Contents of Previous Volumes |
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313 | |