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El. knyga: Learning from Paediatric Patient Journeys: What Children and Their Families Can Tell Us

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Families of children with long-term or complex conditions tell their stories to alert medical students about the kinds of experiences their patients and the families may have while healthcare providers are focusing the technicalities. The editors intended the book to be used as a focus for discussion in small groups with both a pediatrician and a child psychiatrist, but says the stories can be read alone or used for written assignments. Annotation ©2016 Ringgold, Inc., Portland, OR (protoview.com)

Good healthcare is about more than making a diagnosis and giving the correct medical treatment—the experience of those going through the system is hugely important. Parents will remember forever how a piece of news was broken, or the nurse that was dismissive when her child said he was hungry, or the one who noticed his team cap that he is so proud of. Good communication is also absolutely key. This book is a collection of stories that represent the journeys of the many families who have children with long term or complex conditions and usefully draws out the implications for those in training and in practice of the experience of how the medical treatment was delivered.

Recenzijos

"This book describes the raw emotions of children, families, and providers caring for children with chronic conditions Books often focus on one family narrative. This book provides a unique view of diverse family experiences. The royalties from book sales are donate to a healthcare system where many of these children/families may have received care." Anne Turner-Henson, PhD, RN, FAAN(University of Alabama at Birmingham), Doodys Book Review Service

Foreword ix
Acknowledgements xi
Chapter 1 How to Use This Book
1(2)
Chloe Macaulay
Polly Powell
Caroline Fertleman
Chapter 2 Patient Journeys
3(94)
Chloe Macaulay
Polly Powell
Caroline Fertleman
Chapter 3 Themes for Discussion
97(8)
Chloe Macaulay
Polly Powell
Caroline Fertleman
Chapter 4 Reflections on Learning through Patient Journeys
105(2)
Bryony Alderman
Chapter 5 Getting in Touch: Reflections on Clinical Attentiveness
107(8)
Sebastian Kraemer
Chapter 6 Reflections of a Parent
115
Carol Nahra
Chloe Macaulay, Polly Powell, Caroline Fertleman
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