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El. knyga: Life to be Lived: Challenges and Choices for Patients and Carers in Life-threatening Illnesses [Oxford Scholarship Online E-books]

(Psychological Specialist in Palliative Care and Bereavement Coordinator, St Nicholas Hospice, Bury St Edmunds, UK), (Retired Priest and Vice Chairman, The Norfolk Hospice, UK)
  • Formatas: 176 pages
  • Išleidimo metai: 03-Oct-2013
  • Leidėjas: Oxford University Press
  • ISBN-13: 9780199685011
  • Oxford Scholarship Online E-books
  • Kaina nežinoma
  • Formatas: 176 pages
  • Išleidimo metai: 03-Oct-2013
  • Leidėjas: Oxford University Press
  • ISBN-13: 9780199685011
How do people face life-limiting illness and death? This challenging question is discussed in-depth in Life to be Lived by looking at the feelings, hopes, fears and stresses associated with life-threatening illness, often experienced by patients and their carers.

Drawn from personal research and clinical experience, the authors, who work in bereavement counselling and palliative care, examine the process of adjustment that patients and their families go through nearer the end of life.

Case-based examples from counsellors, chaplains, and carers provide an accessible and candid look at the challenges that both patients and carers face when dealing with options from symptom and pain control, communicating the appropriate information to families, to adjusting to the psychosocial implications of being ill.

Life to be Lived is essential reading for professionals and trained volunteers who work as a part of multidisciplinary teams in palliative and end of life care to improve understanding of the attitudes and behaviour of their patients. Families and friends will also benefit from the book as they try to come to terms with their own situations and how they can cope better with them.

This publication offers an inspiring way for people in contemporary society to review death as part of life.
David Oliviere, St Christopher's Hospice

Daugiau informacijos

IAHPC's Book of the Month, November 2014
Foreword v
Preface vii
Acknowledgements ix
Introduction x
Part 1 The patient experience
1 The challenge of illness and pain
3(6)
Help me to live, not to stop dying
3(1)
Pain
4(1)
Curing and healing
5(1)
Stress provoked by treatments
6(1)
Psychological needs in treatment
7(2)
2 All may not be lost
9(7)
Valuing patients as people
9(1)
Some personal sources of strength
10(1)
Absorbing interests
11(1)
Relationship and communication
12(1)
Supportive and/or challenging characteristics
13(3)
3 Trials and adjustment
16(11)
Inner turmoil
16(3)
A cancer journey?
19(1)
Longing for normality and yearning for safety
20(3)
A network of support
23(4)
4 Towards a changed outlook
27(12)
The part of life one has not lived
28(2)
Discovering meaning
30(2)
A sense of achievement
32(1)
Recognising one's identity and status
33(6)
Part 2 The impact on family carers
5 Demands on the family
39(9)
Diagnosis and its demands
40(2)
Logistics
42(1)
Finance
43(1)
Teamwork
44(4)
6 Lives taken over
48(8)
Changing experience of time
49(3)
Priorities and decision making
52(2)
The reality of unpredictability
54(2)
7 Coping with change
56(9)
Denial and overprotection
56(3)
Interdependence and mutual impact
59(3)
Facing a new future
62(3)
8 Some personal consequences for the carer
65(10)
Fatigue and self-neglect
65(3)
Guilt
68(1)
Loss
69(1)
Rewards
70(5)
Part 3 The professional carers and their roles
9 Challenges for the professional carer
75(13)
Patient-centred care
75(2)
Finding a common language
77(1)
Creating and holding a safe space
78(3)
Flexibility in approach and response
81(3)
Coping with a backlog of grief
84(2)
Taking care of themselves
86(2)
10 The power and limitations of words
88(8)
Beyond words ... metaphor and symbol
88(2)
The metaphorical language of rituals
90(2)
Beyond communication, encounter
92(4)
11 Talking with patients
96(10)
Breaking bad news
96(1)
Sharing information
97(1)
Helping people to be heard
98(1)
Talking about illness in the family
99(7)
12 Chaplaincy and spiritual care
106(15)
The role of the chaplain
106(2)
Caution not to impose
108(1)
Spiritual care as giving meaning
109(1)
Regrets and reparation
110(2)
Needs, spiritual and/or religious
112(3)
Overlap of roles
115(1)
Death and dying
116(5)
Part 4 Boundaries and resources
13 Blurred boundaries
121(8)
Expectations and projections
121(2)
Shared responsibility
123(2)
Individual and institution
125(1)
Information and self-disclosure
125(2)
The challenge of visiting the dying
127(2)
14 A wealth of resources
129(16)
From being the subject of suffering to an observer of pain
129(1)
Professional and peer support
130(2)
Hands-on involvement
132(3)
Ways to express feelings and find new meaning
135(2)
Intimacy
137(2)
Acceptance
139(6)
Part 5 The next step
15 The next step?
145(10)
The last great adventure
146(3)
Grief and bereavement
149(3)
In conclusion
152(3)
Postscript 155(2)
Index 157
Dr Catherine Proot is a psychology graduate of Ghent University Belgium and holds a counselling diploma and a PhD from the UEA in Norwich. Psychotherapist and clinical supervisor she has specialised in palliative and bereavement care since 2005. She currently works as Psychological Specialist in Palliative Care and Bereavement Coordinator in St Nicholas Hospice Care in Bury St Edmunds, UK.

The Very Revd Michael Yorke is a Cambridge graduate in Law and Theology. He also studied at The Tavistock Institute in London and the UEA in Norwich. He is a retired Anglican Priest who worked principally in and through four Cathedrals. He has 45 years of experience as a counsellor and was for 18 years a Samaritan three of which as National Chairman. He is currently Vice Chairman to the Norfolk Hospice near Kings Lynn, UK.