Foreword |
|
v | |
Preface |
|
vii | |
Acknowledgements |
|
ix | |
Introduction |
|
x | |
|
Part 1 The patient experience |
|
|
|
1 The challenge of illness and pain |
|
|
3 | (6) |
|
Help me to live, not to stop dying |
|
|
3 | (1) |
|
|
4 | (1) |
|
|
5 | (1) |
|
Stress provoked by treatments |
|
|
6 | (1) |
|
Psychological needs in treatment |
|
|
7 | (2) |
|
|
9 | (7) |
|
Valuing patients as people |
|
|
9 | (1) |
|
Some personal sources of strength |
|
|
10 | (1) |
|
|
11 | (1) |
|
Relationship and communication |
|
|
12 | (1) |
|
Supportive and/or challenging characteristics |
|
|
13 | (3) |
|
|
16 | (11) |
|
|
16 | (3) |
|
|
19 | (1) |
|
Longing for normality and yearning for safety |
|
|
20 | (3) |
|
|
23 | (4) |
|
4 Towards a changed outlook |
|
|
27 | (12) |
|
The part of life one has not lived |
|
|
28 | (2) |
|
|
30 | (2) |
|
|
32 | (1) |
|
Recognising one's identity and status |
|
|
33 | (6) |
|
Part 2 The impact on family carers |
|
|
|
|
39 | (9) |
|
Diagnosis and its demands |
|
|
40 | (2) |
|
|
42 | (1) |
|
|
43 | (1) |
|
|
44 | (4) |
|
|
48 | (8) |
|
Changing experience of time |
|
|
49 | (3) |
|
Priorities and decision making |
|
|
52 | (2) |
|
The reality of unpredictability |
|
|
54 | (2) |
|
|
56 | (9) |
|
Denial and overprotection |
|
|
56 | (3) |
|
Interdependence and mutual impact |
|
|
59 | (3) |
|
|
62 | (3) |
|
8 Some personal consequences for the carer |
|
|
65 | (10) |
|
|
65 | (3) |
|
|
68 | (1) |
|
|
69 | (1) |
|
|
70 | (5) |
|
Part 3 The professional carers and their roles |
|
|
|
9 Challenges for the professional carer |
|
|
75 | (13) |
|
|
75 | (2) |
|
Finding a common language |
|
|
77 | (1) |
|
Creating and holding a safe space |
|
|
78 | (3) |
|
Flexibility in approach and response |
|
|
81 | (3) |
|
Coping with a backlog of grief |
|
|
84 | (2) |
|
Taking care of themselves |
|
|
86 | (2) |
|
10 The power and limitations of words |
|
|
88 | (8) |
|
Beyond words ... metaphor and symbol |
|
|
88 | (2) |
|
The metaphorical language of rituals |
|
|
90 | (2) |
|
Beyond communication, encounter |
|
|
92 | (4) |
|
|
96 | (10) |
|
|
96 | (1) |
|
|
97 | (1) |
|
Helping people to be heard |
|
|
98 | (1) |
|
Talking about illness in the family |
|
|
99 | (7) |
|
12 Chaplaincy and spiritual care |
|
|
106 | (15) |
|
|
106 | (2) |
|
|
108 | (1) |
|
Spiritual care as giving meaning |
|
|
109 | (1) |
|
|
110 | (2) |
|
Needs, spiritual and/or religious |
|
|
112 | (3) |
|
|
115 | (1) |
|
|
116 | (5) |
|
Part 4 Boundaries and resources |
|
|
|
|
121 | (8) |
|
Expectations and projections |
|
|
121 | (2) |
|
|
123 | (2) |
|
Individual and institution |
|
|
125 | (1) |
|
Information and self-disclosure |
|
|
125 | (2) |
|
The challenge of visiting the dying |
|
|
127 | (2) |
|
|
129 | (16) |
|
From being the subject of suffering to an observer of pain |
|
|
129 | (1) |
|
Professional and peer support |
|
|
130 | (2) |
|
|
132 | (3) |
|
Ways to express feelings and find new meaning |
|
|
135 | (2) |
|
|
137 | (2) |
|
|
139 | (6) |
|
|
|
|
145 | (10) |
|
|
146 | (3) |
|
|
149 | (3) |
|
|
152 | (3) |
Postscript |
|
155 | (2) |
Index |
|
157 | |