This book addresses current issues in the neuroscience and ethics of dementia care, including philosophical as well as ethical legal, and social issues (ELSIs), issues in clinical, institutional, and private care-giving, and international perspectives on dementia and care innovations. As such, it is a must-read for anyone interested in a well-researched, thought-provoking overview of current issues in dementia diagnosis, care, and social and legal policy. All contributions reflect the latest neuroscientific research on dementia, either broadly construed or in terms of the etiologies and symptoms of particular forms of dementia. Given its interdisciplinary and international scope, its depth of research, and its qualitative emphasis, the book represents a valuable addition to the available literature on neuroethics, gerontology, and neuroscientific memory research.
Section 1: Conceptual issues 1. The Ethics of Dementia Risk
Reduction.-2. Refined Discourse Ethics and the Social Inclusion of People
with Dementia.-3. Do You Remember Who You Are? The Pillars of Identity in
Dementia.-4. Respect for Autonomy in the Face of Dementia: The Case of
Deception.-Section 2: Empirical and Clinical Implications 5. Directing the
End of Life in Dementia.-6. Diagnosis Threat Related to Disclosure of
Alzheimer Disease Biomarkers and a Discussion of the Ethics in Clinical and
Research Settings.-7. Public Representation of Social and Ethical Issues in
Frontotemporal Dementia.-8. Assessing Consent to Intimate Sexual Relations
Among Nursing Home Residents With Dementia.-Section 3: International
perspectives 9. Defining dementia best care standards when cultural safety is
at stake: The case of Indigenous Canadians with dementia.-10. Towards an
Ethics of Anticipation, between Hope and Responsibility: French Perspectives
in the Case of Alzheimer's Disease.-11. Legal Status and Dignity of Persons
Living with Dementia in Serbia.-12. Ethical implications of genomic research
on dementia in sub-Saharan Africa: addressing the risk of stigma.-13. Patient
Advocacy in Dementia: The Culture and Ethics of Policy-Making and
Representation.-14. Legal capacity in the civil legal lives of persons with
dementia in Taiwan: Implications of the Convention on the Rights of Persons
with Disabilities
Veljko Dubljevic Ph.D.,D.Phil., is an Assistant Professor of Philosophy and Science, Technology and Society (STS) at North Carolina State University. Before arriving in Raleigh, he spent three years as a postdoctoral fellow at the Neuroethics Research Unit at IRCM and McGill University in Montreal, Canada. He studied philosophy (University of Novi Sad) and economics (Educons University), and obtained a PhD in political science (University of Belgrade). After that he joined the Research Training Group Bioethics at University of Tuebingen, and after studying philosophy, bioethics, and neuroscience, he obtained a doctorate in philosophy (University of Stuttgart). Veljkos research focuses on ethics of neuroscience and technology, and neuroscience of ethics. He has over 50 publications in moral, legal and political philosophy and in neuroethics. He co-edited a volume at Oxford University Press (together with Fabrice Jotterand): Cognitive Enhancement: Ethical and Policy Implications in International Perspectives, and published a monograph Neuroethics, Justice and Autonomy: Public Reason in the Cognitive Enhancement Debate, in Springer Book Series The International Library of Ethics, Law and Technology.
Dr. Frances Bottenberg holds an academic position as Lecturer in the Department of Philosophy at the University of North Carolina Greensboro. She received her M.A. in Philosophy from Temple University and her Ph.D. in Philosophy from Stony Brook University. Bottenbergs scholarly work aims to offer counter-perspectives on the nature and value of unusual minds and lived experience. Her publications include Emotion as the Animation of Value, Searching for Alterity: What Can We Learn from Interviewing Humanoid Robots? and "Judging Inappropriateness in Actions Expressing Emotion." In-progress work includes a survey chapter on ethical and social issues faced in dementia care for a clinical manual, as well as a monograph on the phenomenology of dementia. Bottenberg is also a founding member of Reimagining Dementia: A Creative Coalition for Justice, an international initiative aimed at improving the quality of life for people living with dementia.
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