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El. knyga: Paediatric Patient and Family-Centred Care: Ethical and Legal Issues

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This book provides the reader with a theoretical and practical understanding of two health care delivery models: the patient/child centred care and family-centred care. Both are fundamental to caring for children in healthcare organizations. The authors address their application in a variety of paediatric healthcare contexts, as well as an understanding of legal and ethical issues they raise. Each model is increasingly pursued as a vehicle for guiding the delivery of health care in the best interests of children. Such models of health care delivery shape health care policies, programs, facility design, resource allocation decisions and day-to-day interactions among patients, families, physicians and other health care professionals. To maximize the health and ethical benefits these models offer, there must be shared understanding of what the models entail, as well as the ethical and legal synergies and tensions they can create. This book is a valuable resource for paediatricians, nurses, trainees, graduate students, practitioners of ethics and health policy.
Part I Introduction to Patient and Family-Centred Care
1 Paediatric Patient-Centred Care: Evidence and Evolution
3(16)
David B. Nicholas
Krista Keilty
Karima Karmali
2 A Canadian Perspective on a Child's Consent to Research Within a Context of Family-Centred Care: From Incompatibility to Synergy
19(16)
Linda Sheahan
Michael Da Silva
Christine Czoli
Randi Zlotnik Shaul
3 Resource Allocation in Paediatric Patient and Family-Centred Care
35(22)
Jennifer L. Gibson
Part II Legal, Ethical and Cultural Considerations
4 Culture, Religion, and Family-Centred Care
57(22)
Rani H. Srivastava
5 Ethical and Legal Issues in Patient and Family-Centred Care: Canadian First Nations, Metis and Inuit People
79(18)
Julija Kelecevic
6 Accounting for the Family in Law: An Impartial but not Impersonal Point of View
97(18)
Lee A. Chapman
7 Legal Considerations in Paediatric Patient and Family-Centred Healthcare
115(14)
Joan M. Gilmour
Part III Implementation and Lived Experience
8 Paediatric Patient-Centred Care at SickKids: Advancing Child & Family-Centred Care
129(16)
Krista Keilty
David B. Nicholas
Karen Sappleton
Karima Karmali
9 The Effect of Patient and Family-Centred Care (PFCC) Delivery Model on Paediatrics at the Thunder Bay Regional Health Sciences Centre
145(12)
Bonnie Nicholas
10 Creating Partnerships for Life: One Family's Story of Paediatric Patient and Family-Centred Paediatric Care
157(18)
Janis Purdy
11 Supporting the Developing Autonomy of Youth Patients: Reflections on the Role of Healthcare Providers
175(12)
Christy Simpson
Part IV In Context
12 Participation in Paediatric Research Studies
187(22)
Nancy Walton
13 Clinical Genetics Practice: Integrating Paediatric Patient and Family-Centred Care
209(12)
Cheryl Shuman
Riyana Babul-Hirji
14 End-of-Life Decision-Making in the Neonatal Intensive Care Unit: Serving the Best Interests of the Newborn within a Family-Centred Care Framework
221(24)
Jonathan Hellmann
15 Legal and Ethical Issues in Child-and Family-Centred Care: Transplantation
245(24)
Rebecca Greenberg
Michael Campbell
Linda Wright
16 Patient and Family-Centred Care: Critical Partnerships when Treating Adolescent Anorexia Nervosa
269(20)
Lori d'Agincourt-Canning
Lucinda Kunkel
Karen Dixon
17 Lost in Transition: Legal and Ethical Approaches When Applying Patient- and Family-Centred Care to Adolescents with Disabilities
289(32)
Maria L. Z. McDonald
Lucie Wade
18 Ethical Conflicts that may Arise When Caring for Dying Children
321(16)
Christine Newman
Adam Rapoport
Gurjit Sangha
Afterword 337(2)
Index 339