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El. knyga: Palliative Care Nursing of Children and Young People [Taylor & Francis e-book]

  • Formatas: 280 pages
  • Išleidimo metai: 01-Nov-2006
  • Leidėjas: Radcliffe Publishing Ltd
  • ISBN-13: 9781315378329
Kitos knygos pagal šią temą:
  • Taylor & Francis e-book
  • Kaina: 120,02 €*
  • * this price gives unlimited concurrent access for unlimited time
  • Standartinė kaina: 171,46 €
  • Sutaupote 30%
  • Formatas: 280 pages
  • Išleidimo metai: 01-Nov-2006
  • Leidėjas: Radcliffe Publishing Ltd
  • ISBN-13: 9781315378329
Kitos knygos pagal šią temą:
"Children's palliative care is an evolving specialty and as such our knowledge base cannot remain static. This book constantly challenges the reader to critically analyze their own practices and beliefs within an evidence-based framework and as such makes a valuable contribution to the growing body of knowledge on this important subject." - Susan Fowler-Kerry, in the Foreword. This book caters for readers from different working environments and levels of experience. It is ideal for paediatric nurses with no specialist palliative care knowledge, and also for palliative care nurses with no specialist paediatric experience. Other healthcare professionals and therapists working with children, young people and their families will also find this book invaluable. It will also be ideal for undergraduate and postgraduate health and social care students, and professionals involved in children's hospices, community services and charity groups. "This book captures not just the rapidly evolving evidence base, but also as many current developments as possible and applies them in a meaningful way to the care of infants, children, and young people living with life-limiting illness, and their families. It offers an overview of contemporary issues and helps to stimulate the type of dialogue that can bring about the actions that will make a real difference for the children, young people and families in our care." - Rita Pfund, in the Preface.
Foreword v
Preface vi
About the author vii
Acknowledgements viii
How this book works xi
Introduction xix
Part One: The concept of palliative care for children and young people
1(38)
From resistance to resilience: revisiting the concept of palliative care for children and young people
3(10)
Emotional safety in adverse events
13(26)
Part Two: Life-limited illness according to different palliative care categories
39(164)
Group 1: Life-threatening conditions for which curative treatment may be feasible but can fail. Palliative care may be necessary during periods of prognostic uncertainty and when treatment fails. Children in long-term remission are not included. Examples: cancer, irreversible organ failures of heart, liver, kidneys
A sudden, unexpected death in infancy
41(16)
A young child with sudden serious illness
57(16)
An adolescent with cancer
73(19)
Group 2: Conditions where there may be long periods of intensive treatment aimed at prolonging life and allowing participation in normal childhood activities, but premature death is still possible. Examples: cystic fibrosis, muscular dystrophy
Where to next? The transition to early adulthood: a young adult with Duchenne muscular dystrophy
92(17)
Trans-generational illness: a family affected by HIV/AIDS
109(22)
Group 3: Progressive conditions without curative treatment options, where treatment is exclusively palliative and may commonly extend over many years. Examples: Batten's disease, mucopolysaccharidosis
Neurologically degenerative disease
131(19)
A cognate child with end-stage renal disease
150(19)
Group 4: Conditions with severe neurological disability which may cause weakness and susceptibility to health complications, and may deteriorate unpredictably, but are not usually considered progressive. Examples: severe multiple disabilities such as following brain or spinal cord injuries including some children with severe cerebral palsy
Technology-dependent children
169(18)
Congenital complex disability
187(16)
Part Three: Safe practice in expanding boundaries
203(33)
Underpinning safe practice
205(16)
End-of-life care
221(15)
Conclusion and areas of further research 236(3)
Appendix: The key documents 239(11)
Index 250


Lecturer, School of Nursing, University of Nottingham