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El. knyga: Parents' Guide to PANDAS, PANS, and Related Neuroimmune Disorders: Information, Support, and Advice

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  • Formatas: EPUB+DRM
  • Išleidimo metai: 21-Jun-2019
  • Leidėjas: Jessica Kingsley Publishers
  • Kalba: eng
  • ISBN-13: 9781784506674
Kitos knygos pagal šią temą:
Parents' Guide to PANDAS, PANS, and Related Neuroimmune Disorders: Information, Support, and AdviceDidesnis paveikslėlis
  • Formatas: EPUB+DRM
  • Išleidimo metai: 21-Jun-2019
  • Leidėjas: Jessica Kingsley Publishers
  • Kalba: eng
  • ISBN-13: 9781784506674
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Encephalitic autoimmune disorders, including PANDAS and PANS, cause children to display a wide range of symptoms including OCD, anxiety and tics. This helpful guide provides information for families on diagnosis and medical interventions, alongside practical strategies for support that families can carry out at home.

Having a child who suddenly develops PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep), PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) or related conditions such as encephalitis can be a daunting challenge for parents. This clear guide explains the symptoms and diagnosis of PANDAS and PANS, with treatment options and recommended strategies for supporting children at home, at school, and in community settings.

The book covers key symptoms including OCD, tics, anxiety, sensory issues and personality changes, with practical advice on medical management, nutrition, lifestyle, and addressing social and behavioural needs. Each chapter also includes handy sidebars with key information to remember, and action steps for overcoming challenges, managing relapse, family self-care and providing children with the best possible support.

Recenzijos

A Parent's guide to PANDAS, PANS and Related Neuroimmune Disorders is dramatic as it is revealing written by those on the front-line of these debilitating illnesses. This highly-readable guide forces us rethink our definitions of mental illness. Above all, this guide offers coping strategies, hope and optimism the general medical community is unable to give. -- Tim Sorel, Professor, University of Florida, Producer/Director of My Kid is Not Crazy: a search for hope in the face of misdiagnosis A Parents' Guide to PANDAS, PANS and Related Neuroimmune Disorders will be a dog-eared, high-lighted, bookmarked constant companion for parents of children with PANS! It packs practical recommendations for parents from parents, with illustrative case vignettes, up-to-date information, and tools for navigating the journey to healing. It will help parents understand these disorders, work collaboratively with medical and educational professionals and care for their children and themselves. I will recommend it to my patients' families and their medical and educational care teams. -- Margo Thienemann MD, Director of PANS Program Psychiatry, Clinical Professor of Psychiatry, Stanford University School of Medicine

Daugiau informacijos

Clear information and advice for families on what to do if your child has PANDAS, PANS or encephalitis
Acknowledgements 9(2)
Preface 11(4)
1 The Physical Realities of PANDAS and PANS
1 Your Child Has PANDAS or PANS: Now What?
15(11)
2 What's Happening in Your Child's Brain
26(6)
3 Complex Cases and Comorbid Conditions
32(12)
4 Common Treatments and Therapies for PANDAS/PANS
44(7)
5 Managing Disruptive Behavior and Safety Planning
51(10)
6 Challenges in Finding and Accessing Treatment
61(5)
7 Managing Relapse and Recovery
66(9)
2 Living Well with PANDAS and PANS Symptoms
8 Emotional and Behavioral Impact: Managing Mental Health Symptoms on a Day-to-Day Basis
75(10)
9 Managing OCD on a Daily Basis
85(5)
10 Managing Anxiety on a Daily Basis
90(5)
11 Grieving and Family Relationships
95(7)
12 Family Self-Care: Acknowledging Trauma
102(5)
13 Moving Beyond Trauma
107(8)
3 Planning, Advocacy, and Communication
14 Routines, Supports, and Social Skills
115(7)
15 Communicating and Advocating Effectively on Your Child's Behalf
122(7)
16 School Supports, Accommodations, and Adaptations
129(9)
17 Guidance for Clinicians: What to Look for and How to Help
138(4)
18 Conclusion `
142(1)
Appendix: PANS Family Safety Plan 143(2)
References 145(6)
Further Reading 151(2)
Index 153
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