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El. knyga: Reaching for Normal: A Mother's Memoir of Raising a Child with Brain Cancer and Chronic Illness

5.00/5 (32 ratings by Goodreads)
  • Formatas: 260 pages
  • Išleidimo metai: 12-May-2021
  • Leidėjas: Toplight Books
  • Kalba: eng
  • ISBN-13: 9781476642840
  • Formatas: 260 pages
  • Išleidimo metai: 12-May-2021
  • Leidėjas: Toplight Books
  • Kalba: eng
  • ISBN-13: 9781476642840

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"When Amy and Dave learned that their six-month-old daughter, Emily, was diagnosed with a slow-growing brain tumor, they were devastated. Throughout her childhood, they managed their daughter's complex cancer, all the while striving just to be an ordinary, normal family. In doing so, Amy kept her emotions close and plastered on smiles, some genuine, as she worked in between cancer clinic appointments, had another baby, and attended cul-de-sac potluck dinners. The smiles were harder to put on when Emily suffered from a massive stroke just before her 8th birthday. Amy suddenly found herself a parent to an active toddler and an almost eight-year-old who could no longer talk, walk, or feed herself. Emily's spirit remained shockingly unscathed. In the end, itwas she who reminded the family to laugh, smile, and finally accept that they were anything but ordinary. This memoir of motherhood at its hardest reveals what went on behind closed doors and beneath the smiles, as Amy writes in raw, honest detail about her relationship with her spouse, juggling work demands, raising her typically developing son, and finding lasting friendships throughout each of Emily's setbacks"--
Acknowledgments vi
Preface 1(2)
1 The Diagnosis
3(14)
2 The Aftermath
17(10)
3 Our New Normal
27(17)
4 Another Surgery
44(6)
5 Summer from Hell
50(16)
6 And Another Surgery
66(7)
7 Another New Normal
73(6)
8 Grown Up Friends
79(14)
9 Baby Time
93(12)
10 Goodbye Epilepsy
105(10)
11 Home Away from Home
115(11)
12 Home Sweet Home
126(10)
13 School
136(5)
14 Memory
141(5)
15 Summertime Blues
146(13)
16 Sky High Hope
159(8)
17 Chaos
167(5)
18 Welcome to NC
172(7)
19 Aides
179(4)
20 Working
183(8)
21 The Tumor. Again
191(11)
22 Decisions
202(3)
23 Little Brothers
205(6)
24 Blood Pressure
211(10)
25 Iceland
221(12)
26 The Beach
233(10)
27 Answers
243(6)
Epilogue 249(2)
Index 251
Amy Daniels has a masters in social science and has had a career working on social and clinical research projects in the academic, government, and private sectors. She also contributes to various parenting publications and lives in Raleigh, North Carolina.