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Saving Each Other: A Mother-Daughter Love Story [Kietas viršelis]

3.29/5 (220 ratings by Goodreads)
  • Formatas: Hardback, 288 pages, aukštis x plotis: 235x156 mm, weight: 499 g
  • Išleidimo metai: 16-Oct-2012
  • Leidėjas: Vanguard Press Inc
  • ISBN-10: 1593157339
  • ISBN-13: 9781593157333
Kitos knygos pagal šią temą:
  • Formatas: Hardback, 288 pages, aukštis x plotis: 235x156 mm, weight: 499 g
  • Išleidimo metai: 16-Oct-2012
  • Leidėjas: Vanguard Press Inc
  • ISBN-10: 1593157339
  • ISBN-13: 9781593157333
Kitos knygos pagal šią temą:
This memoir describes the emotional journey of a mother and daughter each contending with the daughter's diagnosis of Nueromyeltis Optica (NMO), a rare, incurable autoimmune disease and the pair's pioneering efforts to bring attention to the disorder through a foundation. 30,000 first printing.

This memoir describes the emotional journey of a mother and daughter each contending with the daughter's diagnosis of Nueromyeltis Optica (NMO), a rare, incurable autoimmune disease.

Saving Each Other
On the surface, Victoria Jackson is the American Dream personified: from a troubled childhood and unfinished high school education she overcame immeasurable odds to create a cosmetics empire valued at more than half a billion dollars. Married to Bill Guthy—self-made principal of infomercial marketing giant Guthy-Renker—Victoria's most treasured role was mother to three beautiful, beloved children, Evan, Ali, and Jackson.

Suddenly, Victoria's dream life is broken as she begins to battle a mother's greatest fear. In 2008, her daughter, Ali, began experiencing unusual symptoms of blurred vision and an ache in her eye. Her test results led to the diagnosis of a disease so rare, the chance that she had it was only 2%. Neuromyeltis Optica (NMO) is a little understood, incurable, and often fatal autoimmune disease that can cause blindness, paralysis, and life-threatening seizures, and afflicts as few as 20,000 people in the world. At the age of 14, Ali was given a terrifying prognosis of between four to six years to live.

Saving Each Other begins just as Victoria and Bill learn of Ali's disease, starting them on a powerful journey to save Ali, their only daughter, including bringing together a team of more than fifty of the world's leading experts in autoimmune and NMO-related diseases to create the Guthy-Jackson Charitable Foundation.

Told in alternating viewpoints, Victoria and Ali narrate their very different journeys of coming to terms with the lack of control that neither mother nor daughter have over NMO, and their pioneering efforts and courage to take their fight to a global level.
Bringing their story to light with raw emotion, humor, warmth, and refreshing candor, Saving Each Other is the extraordinary journey of a mother and daughter who demonstrate how the power of love can transcend our greatest fears, while at the same time battling to find a cure for the incurable.

A Note from the Authors xiii
Prologue: Where It Begins xvii
PART I
1 The Eyeball Headache
3(32)
2 Stuck in the Snow Globe
35(20)
3 Leaving Paradise: Faith Healers, Dromedary Cures, and Sweet Sixteens
55(54)
PART II
4 From Mascara to Medicine
109(28)
5 Flying Blind
137(34)
6 The Meaning of Fire
171(34)
7 Defying Gravity
205(28)
Epilogue: Changing the Narrative 233(6)
Acknowledgments 239(6)
Resources: What You Need to Know 245(4)
Afterword 249(2)
Brian Weinshenker
NMO Defined 251