Preface |
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v | |
Introduction |
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vii | |
Acknowledgments |
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ix | |
Five Ways to Use This Book |
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xi | |
Part One: Believing The Unbelievable: Facing Trauma At The Hospital And Back Home |
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Most people who lose vision or have a diagnosis of future significant vision loss have a problem believing it. |
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(You may feel the same, but then you wouldn't be reading this book!) They know perfectly well that their vision is blurred, becoming contracted, or obscured, but just can't make it fit with their experience of life. |
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Chapter 1 The Shock And The Docs |
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5 | (13) |
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5 | (1) |
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Questions, Questions, Questions |
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6 | (1) |
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7 | (1) |
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Second and Third Opinions |
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8 | (1) |
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8 | (1) |
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Sight Loss Over Many Years |
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9 | (1) |
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Numbness, Disbelief, and Anger |
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10 | (1) |
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10 | (1) |
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11 | (1) |
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What Is Blindness Anyway? |
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12 | (1) |
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Can Sight Loss Be Prevented? |
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13 | (1) |
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What About Your Job or College Career? |
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13 | (2) |
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How Independent Is Independent? |
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15 | (1) |
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Disability on Top of Disability |
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15 | (1) |
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Young Adults with Cognitive Disabilities |
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16 | (1) |
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What About the Rest of Your Body? |
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16 | (1) |
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When to Stop Searching for a Cure |
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17 | (1) |
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18 | (15) |
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Finances, Employment, and Housing |
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18 | (1) |
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19 | (1) |
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20 | (1) |
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21 | (1) |
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22 | (1) |
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Why Change Your Home Arrangements? |
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23 | (1) |
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Safety First, but Only at First |
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24 | (1) |
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25 | (1) |
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26 | (1) |
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27 | (1) |
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28 | (1) |
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Visits from Rehab Teachers |
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29 | (4) |
Part Two: A New Life: Going Through Grief, Preparing For Change |
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It can take a while for people losing sight to realize that they are also losing adult power and competence. |
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Then they may start to grieve, feeling afraid, anxious, and angry. |
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Maintaining belief in their own worth takes courage and persistence. |
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(You get banged around. Hang on tight.) |
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Acceptance of the need for change can follow. |
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Chapter 3 Learning To Trust Yourself |
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33 | (13) |
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33 | (1) |
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When You Can't Believe Your Eyes |
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34 | (1) |
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35 | (1) |
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Believing in Yourself and Sticking to It |
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35 | (1) |
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Supporting Your Friends as They Support You |
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36 | (1) |
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37 | (1) |
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38 | (1) |
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Preparing Simple Meals and Snacks |
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39 | (1) |
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Getting Back to Household Tasks |
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40 | (1) |
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The Mail, the Bills, and Your Signature |
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41 | (1) |
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42 | (2) |
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Faith, Meditation, and Exercise |
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44 | (1) |
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Giving to Others and Feeling Better About Yourself |
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45 | (1) |
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Chapter 4 Grief, Anger, Fear, And Denial |
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46 | (11) |
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Grief Is a Messy Business. Can You Avoid It? |
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46 | (1) |
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47 | (1) |
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48 | (1) |
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49 | (1) |
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49 | (1) |
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Anger, Resentment, and Envy |
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50 | (1) |
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Grief and Loss for Your Partner or Family |
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51 | (1) |
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Giving Up Before You Can Begin Again |
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52 | (1) |
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53 | (1) |
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54 | (1) |
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Medication While You Grieve |
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55 | (2) |
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Chapter 5 Accepting Change: Retraining Your Senses And Your Brain |
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57 | (16) |
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57 | (1) |
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When Is the Right Time to Get Training? |
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58 | (1) |
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Training at Home, at a Center, or in a Residential Program |
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59 | (1) |
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60 | (1) |
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60 | (2) |
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Contrast and Highlighting |
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62 | (1) |
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63 | (1) |
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63 | (2) |
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65 | (1) |
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Waking up Your Hands; Being All Ears |
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66 | (1) |
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67 | (1) |
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68 | (5) |
Part Three: Practicing Skills And Social Interactions |
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It's important for people to start asserting themselves. |
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Information, training, and practice move them towards personal recovery. |
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(All this can make you slower than a snail and crosser than a bear!) Memory and attention improve, and people begin to reaffirm their relevance at home and renegotiate tasks. |
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But they have to speak up! |
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Chapter 6 Learning To Be Assertive With Sight Loss |
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73 | (12) |
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What Is Assertive Speech? |
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73 | (1) |
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74 | (1) |
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Esteem and Compassion for Yourself |
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74 | (1) |
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Assertive, Aggressive, Non-Assertive |
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75 | (1) |
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76 | (1) |
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Disclosing Your Sight Loss |
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77 | (1) |
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78 | (2) |
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80 | (1) |
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81 | (1) |
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From Protected to Assertive |
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82 | (1) |
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Practicing Assertiveness with Sight Loss |
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83 | (2) |
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Chapter 7 A Home That Works For Everyone |
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85 | (17) |
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85 | (1) |
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Establishing a Secure and Hazard-Free Home |
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86 | (1) |
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Give Me Liberty or Give Me...Safety? |
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87 | (1) |
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88 | (2) |
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Get the Guessing out of Medications |
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90 | (1) |
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91 | (1) |
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Bathrooms-Your Own and Your Friends |
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92 | (1) |
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93 | (1) |
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94 | (1) |
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95 | (1) |
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96 | (1) |
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The Fish and the Fishing Pole |
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97 | (2) |
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99 | (1) |
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What Living Arrangement Will Work? |
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100 | (2) |
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Chapter 8 Social Encounters Without Good Vision |
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102 | (15) |
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What if You Can't See Her Smile? |
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102 | (1) |
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People Connect with Their Eyes First |
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103 | (1) |
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The Three S's: Seated, Simple, and Small |
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103 | (2) |
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105 | (1) |
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Going to Events with a Companion |
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105 | (2) |
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107 | (1) |
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Independent from the Start |
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107 | (2) |
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109 | (1) |
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110 | (1) |
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"...But Everyone Already Knows!" |
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111 | (1) |
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"It's the Unstructured Events That Kill You" |
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112 | (5) |
Part Four: Going Solo |
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Many people reaffirm trust in themselves and feel able to search for positive changes. |
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(You are finally getting to the good part!) It may be time to reassess relationships and lessen dependence on friends who see well. |
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Recognizing the need to assert yourself and educate other people about vision loss is the next step. |
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Chapter 9 Independent Socializing |
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117 | (13) |
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When to Change Your Operating System |
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117 | (1) |
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Step Away! Begin Independent Socializing |
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117 | (1) |
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The Three P's: Prioritize, Plan, and Phone (or Text) |
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118 | (1) |
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119 | (1) |
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120 | (1) |
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Should I Tell People About My Vision? |
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121 | (1) |
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122 | (1) |
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Joining a Group at a Party |
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122 | (2) |
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Compensating for Visual Cues |
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124 | (1) |
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Speech, Sound and Distance |
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124 | (1) |
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Events Centered on Seeing |
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125 | (1) |
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126 | (2) |
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128 | (2) |
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Chapter 10 Getting Out On Your Own |
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130 | (19) |
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Hats, Shoes, and Fastenings |
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130 | (1) |
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Cars, Cabs, and Paratransit |
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131 | (1) |
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132 | (1) |
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133 | (1) |
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134 | (1) |
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Managing Your Appointments |
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135 | (2) |
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137 | (1) |
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138 | (1) |
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Shopping at Grocery and Other Retail Stores |
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139 | (1) |
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140 | (1) |
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141 | (1) |
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Adapted Sports and Recreation |
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142 | (1) |
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143 | (1) |
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144 | (5) |
Part Five: A Satisfying Life |
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The grief of losing good vision can still catch you unawares. |
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Compassion and esteem for yourself, social outreach, and planning will help you cope with the challenges. |
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If you have recovered a strong sense of yourself-if you can be positive and assertive-you can find a satisfying life. |
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Chapter 11 Personal Recovery |
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149 | (15) |
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149 | (1) |
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Is Sight the Best Choice for the Task? |
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150 | (1) |
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Reflecting Yourself Without a Mirror |
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151 | (1) |
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Memoirs and Movies About Sight Loss |
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152 | (1) |
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Who Will You Hang Out With? |
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152 | (1) |
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Appreciation, Attraction, and Dating |
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153 | (1) |
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Communicating in Close Relationships |
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154 | (1) |
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Caring for Babies and Young Children |
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155 | (1) |
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156 | (2) |
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Pot Lucks, Gifts, and Cards |
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158 | (1) |
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159 | (1) |
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Trips and Getaways Can Still Be a Thrill |
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160 | (2) |
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Accessible Art and Culture |
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162 | (2) |
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Chapter 12 A Whole Person Again |
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164 | |
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164 | (1) |
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Empowerment Within the Family |
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165 | (1) |
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165 | (1) |
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Reaching Out for Personal and Professional Assistance |
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166 | (1) |
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167 | (1) |
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168 | (1) |
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Tool Up with Charitable or Civic Work |
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169 | (1) |
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170 | (3) |
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173 | |