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El. knyga: Work of Inclusion: An Ethnography of Grace, Sin, and Intellectual Disabilities

(Mount St Mary's University, USA)
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Work of Inclusion: An Ethnography of Grace, Sin, and Intellectual DisabilitiesDidesnis paveikslėlis
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Using ethnographic research, The Work of Inclusion brings the standpoints of people with intellectual disabilities to the forefront of the theological conversation around disability, inclusion, grace, and sin.

In a world shaped by interdependency, developing a theological attunement to intellectual disability helps us to understand that human agency is both enabled by and limited by dependency relationships. Only by recognizing the kinds of complex layers of agency seen in this ethnographic study can Christian ethics more broadly address the place of hope, grace, and resistance against structures of sin and injustice.

Recenzijos

Lorraine Cuddeback-Gedeon's The Work of Inclusion upends the approach to theology by a lone researcher in the library stacks and at the computer to be with the subjects of her research, using the tools of ethnography, and engaging directly with the subjects of her work: People with Intellectual and Developmental Disability. This research navigates the inclination to impose meaning on encounters between the ethnographer and her subjects. Cuddeback-Gedeon successfully risks eliciting non-discursive communication with her subjects by turning deftly toward discovering an embodied communication, through a conscious of shared humanity, and fashioned by solidaristic reflexivity. -- Mary Jo Iozzio, Boston College, USA The area of theological ethnography is growing in popularity and scope. At heart it seeks to explore what God is doing in the world. In the same way as systematic theology scrupulously examines scripture and tradition to discover what God has done, theological ethnography uses ethnography for theological purposes: to discover what God is going within Gods people now. To date the issue of disability in general an intellectual disability in particular have not really been a focus for this emerging discipline In this book, Lorraine Cuddeback-Gedeon breaks new ground in using ethnography to develop new perspectives on the theology of disability. The book is a fascinating and liberating exploration of theology and disability and an important contribution to the ongoing conversations within the field. -- John Swinton, University of Aberdeen, UK Using ethnographic research, Cuddeback-Gedeon attempts to bridge the gap between disabled communities and the scholarship that aims to represent them. Cuddeback-Gedeon urges scholars to not merely discuss people with IDD from a distance but to, instead, generate and enhance disability discourse alongside IDD communities as prominent and essential conversation partners * Reading Religion *

Daugiau informacijos

Using ethnographic fieldwork, the book offers a deeper understanding of how grace and sin are visible within the lives and relationships of people with intellectual disabilities.
Acknowledgments x
Introduction 1(18)
Defining Disability
2(3)
The Risk of Taking a Liberationist Approach to IDD
5(4)
Solidarity, Reflexivity, and Intellectual Disability
9(2)
Ethnography and Embodied Revelation
11(1)
Accountability and Reflexivity
12(4)
Daring to Identify Grace
16(3)
1 We Speak for Them: Payton and the Parent Movement
19(34)
A Note on Language
20(1)
Defining and Describing the Feebleminded: Burden or Opportunity?
20(4)
Disability after the Second World War
24(1)
The Parent Movement
25(1)
Naming and Claiming the "Special Child"
26(2)
Rita Jo's Parents and a New School
28(4)
The Progression of Inclusion
32(1)
From Special to Mainstream
32(3)
Deinstitutionalization
35(3)
The State Children's Hospital
38(3)
Eastside Center
41(2)
The Special Olympics: Does Inclusion Require Integration?
43(3)
The Future of Parent Advocacy
46(2)
New Opportunities, Similar Limitations
48(5)
2 We Speak for Ourselves: Self-Advocacy, Autonomy, and Flourishing
53(32)
Setting the Groundwork: Shared Advocacy and Goals
55(2)
The ADA---No One Left Behind
57(4)
Putting Rights to Good Use: People First and Self-Advocacy
61(2)
Self-Advocacy and Normalization in Disability Services
63(6)
The Claim of Insufficiency for Disability Rights
69(4)
Disability Justice as Necessary for Disability Rights
73(1)
When Inclusion Reaches Belonging: Current Practices and Debates
74(4)
Structured Independence: Payton Industries
78(1)
A Day in the Life
79(6)
3 Speaking to Each Other: Dependency, Care Work, and Grace
85(38)
Defining Care Work in the Context of Disability
86(2)
Care Work: Where Dependence and Independence Meet
88(4)
Grace for Clients within Care Work
92(4)
Agency and Epistemic Justice in Care Work
96(3)
Gemma's Decision
99(2)
Epistemic Justice and Profound Intellectual Disability
101(2)
Care Workers, Justice, and Grace
103(3)
Secondary Dependencies and Care Workers
106(6)
The "Need to Understand, Respect, and Serve Everyone"
112(3)
What Clients Owe Care Workers
115(5)
Care: Differences of Degree, Not Kind
120(3)
4 Difficult Conversations
123(30)
Sin, Intent, and Agency
124(4)
Practice Theory and Intention
128(2)
The Sin of Normalcy
130(1)
The Curriculum of Normalcy
131(3)
Hard Agencies: Public Performances and Hidden Transcripts
134(1)
Public Scripts: Euphemizing Normalcy
135(3)
Hidden Transcripts: Gossiping
138(1)
Resisting the Script: Risk and Realism
139(3)
"Soft Agencies": Tactics in Search of Place
142(3)
Finding Place in Spaces of Normalcy
145(3)
Resistance and Complicity
148(5)
Conclusion: Voices United
153(12)
Catholic Institutions and Inclusion
154(4)
Whose Job Is It Anyways? Tensions in Disability Services
158(2)
Playing Offense
160(1)
Understanding Support Structures
161(2)
Belonging, Normalization, and Human Flourishing
163(2)
Bibliography 165(8)
Index 173
Lorraine V. Cuddeback-Gedeon is Assistant Professor of Theology at Mount St Mary's University, USA.
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